HIV Clinic Accidentally Reveals Hundreds of Patients' Identities

One of Britain’s leading sexual health clinics has apologised after mistakenly revealing the identities of hundreds of HIV-positive patients.

The 56 Dean Street clinic in London sent a newsletter on Tuesday that disclosed the names and email addresses of about 780 recipients. The newsletter is intended for people using its HIV and other sexual health services, and gives details of treatments and support.

The clinic, which is run by the Chelsea and Westminster NHS trust, apologised shortly after sending the email and on Wednesday pledged to investigate how the breach occurred.

Britain’s data protection watchdog is likely to launch an investigation into the privacy breach, thought to be one of the biggest of its kind.

The newsletter was sent to about 780 patients who have signed up to its Option E service, which lets people book appointments and receive test results by email. Instead of hiding the personal details of those on its recipient list, it included their full names and email addresses.

The Option E email newsletter that was sent to 780 recipients this week.

One HIV patient whose details were exposed by the email said the NHS now has “no way of controlling who sees this information now and, in the wrong hands, this list could be dynamite”.

He told the Guardian: “I have been a patient at 56 Dean Street since moving to London five years ago and I have always trusted them with my information. OptionE is a service set up for patients who are stable and on longterm HIV treatment. It is designed to make life easier so your results, etc, are sent via email.

“I find it impossible to believe that in this day and age this can happen. I was able to scroll down the list and identify the names of a number of people who I knew, some of whom I was unaware of their status.”

Elliot Herman, 38, from London, said the email contained the names of friends who had never disclosed their HIV status to him before.

“It’s not difficult to put those names into Facebook and bring up their profiles and personal details,” he said. “If my details were on that list I would feel angry and disappointed at the clinic for having such a shit system that this can happen.”

How 56 Dean Street clinic recalled the original email

Within hours of the breach, the clinic set up a helpline and sent patients an email apology from Dr Alan McOwan, Chelsea and Westminster hospital NHS trust’s director for sexual health.

It said: “I’m writing to apologise to you. This morning at around 11.30am we sent you the latest edition of OptionE newsletter.

This is normally sent to individuals on an individual basis but unfortunately we sent out today’s email to a group of email addresses. We apologise for this error.

“We recalled/deleted the email as soon as we realised what had happened. If it is still in your inbox please delete it immediately.

Clearly this is completely unacceptable. We are urgently investigating how this has happened and I promise you that we will take steps to ensure it never happens again. We will send you the outcome of the investigation.”

A 56 Dean Street spokesman said the breach was down to a “human mistake” and that the employee responsible was distraught. The clinic later said that not all the recipients of the email were necessarily HIV positive.

The Information Commissioner’s Office (ICO) said it was aware of the incident and was making inquiries. The privacy watchdog can levy fines of up to £500,000 for significant data breaches.

— ICO (@ICOnews)September 2, 2015

We are aware of the incident regarding the 56 Dean Street clinic and are making enquiries

Herman, whose friends’ HIV status was exposed in the email, has complained about the breach to the NHS patient advice and liaison service.

“This is serious breach of data protection. There are several names I recognise from the list, and while I am of course being discreet, I am not sure I trust every other person on the list to do the same,” he wrote in the complaint.

He added: “I feel bad making this complaint, because I have a great deal of respect and admiration for the excellent service provided by the clinic and my own doctor, Alan McOwan, who has always provided superb clinical care. I have never had cause to complain in the past. However, I feel this is important enough to bring to official attention.”

56 Dean Street, based in Soho, central London, bills itself as Europe’s busiest sexual health, contraception and HIV care clinic. In 2011, the clinic set the world record for the most HIV tests performed in one location, at G-A-Y bar in Soho on World Aids Day.

Last year, it claimed to be the first clinic in the world to have an on-site Infinity machine, allowing it to give HIV test results within six hours.

The clinic has set up a helpline for patients affected by the breach on 020 3315 9555 or 020 3315 9594.


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