The Marketing of Breast Cancer

By Mary Ann Swissler, Southern Exposure. Posted September 16, 2002.

Judy Brady has little use for the limelight. Yet, as someone with a lot on her mind, she has much to say about what she terms "the marketing of breast cancer." One of the worst examples, she says, is the Dallas-based Susan G. Komen Foundation and its annual fundraiser, the 5K Race for the Cure.

Now held year-round in 110 U.S. cities and abroad, the festivities offend Brady and the group Toxic Links Coalition. The races, they say, merely focus women on finding a medical cure for breast cancer, and away from environmental conditions causing it, the problems of the uninsured, and political influence of corporations over the average patient.

To drive this point home, Brady and the coalition have, since 1994, helped organize a vocal and visible presence most years at Komen's San Francisco race.

Sometimes leafleting, and sometimes holding up hand-painted signs and banners, they always face stiff competition from the typically uplifting and euphoric Race atmosphere. Up to 1 million participants in 2000 alone were greeted as they crossed the finish line with live music, inspirational speakers and acres of colorfully adorned corporate booths. Pink, the chosen color of the international breast cancer movement, is everywhere, on hats, T-shirts and ribbons. A sense of community and camaraderie pervades the celebration by hundreds, sometimes thousands, of breast cancer survivors and friends of survivors.

"What's missing is the truth," wrote Brady in a Spring 2001 newsletter article for the Women's Cancer Resource Center, a support services center located in Berkeley, Calif. "There's no talk about prevention, except, in terms of lifestyle, your diet for instance. No talk about ways to grow food more safely. No talk about how to curb industrial carcinogens. No talk about contaminated water or global warming."

"I really don't think environmental causes of cancer are acknowledged enough," said Dr. C.W. Jameson of the U.S. National Institutes of Health. "It warrants attention so people can make better, more informed choices, as to where they live or what professions they work in," said Jameson, the director of a biennial report on cancer-causing agents published by the Institute of Environmental Sciences.

Measuring these carcinogenic agents remains difficult despite recent gains. "Measuring levels of contaminants in the environment is getting better," says Dr. Michael McGeehin, director of the CDC National Center for Environmental Health. But proving the correlation between toxins and cancer can take decades from the time of exposure to the time a tumor might develop, he said.

Brady and the coalition are persistent in their message, yet the circle it travels in remains small, especially when compared with that of the Komen Foundation and its founder, Nancy G. Brinker. Now the U.S. Ambassador to Hungary, Brinker is the E.F. Hutton of the breast cancer world -- when she speaks anyone who's anyone listens.

Brinker relies on the blockbuster PR value of the 5K Race for the Cure. The year-round calendar of cancer walks that draw grief-stricken yet hopeful patients and their loved ones, along with a fawning media, preserve Brinker and her group's image as being on the side of the average American woman tragically afflicted with breast cancer.

So most people would be shocked to find that the Komen Foundation helped block a meaningful Patients Bill of Rights for the women it has purported to serve since the group began in 1982.

Despite proclaiming herself before a 2001 Congressional panel as a "patient advocate for the past 20 years," demanding access to the best possible medical care for all breast cancer patients, Federal Election Commission records show the Komen Foundation and its allies lobbied against the consumer-friendly version of the Patients Bill of Rights in 1999, 2000 and 2001. Brinker then trumpeted old friend George W. Bush in August 2001 for backing a "strong" Patients' Bill of Rights, while most patient advocates felt betrayed.

Brinker's support of Bush should come as no surprise, since Bush nominated Nancy Brinker for a U.S. Ambassador post just less than one business quarter earlier, at the end of May 2001. The President also no doubt helped toast Brinker's Congressional approval for the Hungary position on Aug. 3, 2001, less than 24 hours after the House version of the Patients' Bill of Rights, dubbed "the HMO bill of rights" by critics, passed on Aug. 2, 2001.

The Left And Right of the Patients Bill of Rights

Spiraling health care costs during the 1980s pushed the issue of patients' rights front and center during the 1992 presidential election. President Clinton tried unsuccessfully to increase coverage for the uninsured and to pass patient-protection legislation. "Since then, managed care reform has been resuscitated time and again on Capitol Hill without much success," according to the Center for Responsive Politics.

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