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Rights and Liberties

Multiple Sclerosis Sufferer Serving 25-Year Sentence for Taking Pain Killers

By Maia Szalavitz, Huffington Post. Posted March 14, 2007.


Jailing Richard Paey for taking pain pills serves no one -- not taxpayers, not pain patients, and certainly not the image of America as a decent, humane country.
Advertisement

Florida's Supreme Court has rejected an appeal from Richard Paey, a wheelchair-using father of three who is currently serving a 25-year mandatory prison sentence for taking his own pain medication. In doing so, the court let stand a decision which essentially claims that the courts have no role in checking the powers of the executive and legislative branches of government when an individual outcome is patently unjust.

Richard Paey -- who suffers both multiple sclerosis and from the aftermath of a disastrous and barbaric back surgery that resulted in multiple major malpractice judgments -- now receives virtually twice as much morphine in prison than the equivalent in opioid medications for which he was convicted of forging prescriptions.

He had previously been given legitimate prescriptions for the same doses of pain medicine -- but made the mistake of moving to Florida from New Jersey, where he could not find a physician to treat his pain adequately. Each of his medical conditions alone can produce agony. Paey has described his pain as constantly feeling like his legs had been "dipped into a furnace."

The Ivy-league educated attorney has no prior criminal convictions, and weeks of surveillance by narcotics agents did not find him selling the medications.

The Florida Court of Appeals had upheld his conviction -- despite the lack of evidence of trafficking and despite the fact that most of weight of the substances he was convicted of possessing (higher weights lead to longer sentences) was made up of Tylenol, not narcotics. The majority suggested that Paey seek clemency from the governor, claiming that his plea for mercy "does not fall on deaf ears, but it falls on the wrong ears."

In a jeremiad of a dissent, Judge James Seals called the sentence "illogical, absurd, unjust and unconstitutional," noting that Paey "could conceivably go to prison for a longer stretch for peacefully but unlawfully purchasing 100 oxycodone pills from a pharmacist than had he robbed the pharmacist at knife point, stolen 50 oxycodone pills, which he intended to sell to children waiting outside, and then stabbed the pharmacist."

But the Florida Supreme Court disagreed, letting the sentence stand, without comment. It released its cowardly decision in the media quiet of a Friday night. As Siobhan Reynolds, founder of the Pain Relief Network points out, "Where Florida stands now is that individuals have no recourse to the courts when the executive and legislative branches behave tyranically." Under the Constitution, the role of the judiciary is supposed to be to check the powers of the other branches -- not simply to defer to them.

Paey's only other alternatives now are an appeal to the U.S. Supreme Court or clemency from Governor Charlie Crist.

Writing in support of clemency, leading academic pain specialist Russell Portenoy, MD, said, "the information available indicates that any questionable actions [Paey] took, actions which led ultimately to his arrest, were driven by desperation related to uncontrolled pain."

He noted that such cases "may increase the reluctance of professionals to treat pain aggressively."

Portenoy wrote that despite the fact that Paey required high doses of opioids, those doses were "clearly in the range used by pain specialists in this country." He stressed that, "The number of pills or milligrams of an opioid required for analgesia says nothing about any of the negative outcomes associated with these drugs-including abuse, addiction and diversion-and reference to the amount of drug as evidence of these outcomes by regulators or law enforcement should not be condoned."

Unfortunately, across the country, pain patients are being undermedicated and doctors are going to prison because the Justice Department refuses to believe this.

People profess to be experts about addiction because they have personal experience with drugs or addicts; they think they know about opioid drugs because they've watched a few episodes of E.R. or been through DARE classes at school. The truth is that opioids are amongst the safest drugs known to humanity -- when given appropriately, they do not kill.

Unlike aspirin, Tylenol, Vioxx, Celebrex, Advil, Alleve and every other known class of pain medications, opioids do not harm any organs and there is no maximum dose once a person has become tolerant to them. People need to educate themselves about the complexities of how drugs, brains and settings interact before making policies about them that send people like Richard Paey to prison.

Governor Crist, please, do the right thing and send Richard Paey home.

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See more stories tagged with: richard paey, florida supreme court

Maia Szalavitz is a senior fellow at the media watchdog group STATS.

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Fire the judge
Posted by: Thundergod on Mar 14, 2007 1:09 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
He isn't fit to be a judge!
When are we going to get real justice?
When we get rid of judges like this one!!!

[« Reply to this comment] [Post a new comment »] [Rate this comment: 1 - 2 - 3 - 4 - 5]

» RE: Fire the judge Posted by: willymack
» RE: Fire the judge Posted by: aussidawg
Fire the Judge? Is that ALL?
Posted by: domenico234 on Mar 14, 2007 4:21 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I think he should be ridden out of town on a rail. It's pretty damn easy for some people to ignore other people's pain.

[« Reply to this comment] [Post a new comment »] [Rate this comment: 1 - 2 - 3 - 4 - 5]

This article is missing the point
Posted by: vitualis on Mar 14, 2007 5:09 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Firstly, I do not agree with the severity of the punishment.

However, the author (originally in the Huffington Post) is completely one-sided in this article and has really missed the point. In doing so, she has built up a strawman to knock down.

There is no questions that chronic pain should be treated effectively and opioid analgesics are part of therapy for chronic pain. However, if you ask any pain physician, they consist only a small part of the holistic solution.

As a matter of correction, opioid analgesics are not a panacea and it has clear risks when used in excess.

I do not know this case to any depth but the suggestion that this person resorted to his actions because he could not find a pain specialist is entirely conjectural and in reality quite unlikely. Any patient on opioid analgesics for control of chronic pain would be well aware of the difficult of getting prescriptions except from their own practitioner and thus would also know that with any move, a handover of care is necessary. If the move was unexpected, it is not a tall order to ask the usual treating physician to contact a colleague in the patient's new locality.

Let us actually look at what this person has done.

He forged a prescription for narcotics. This is not only clearly a criminal offence, it is also a serious one in any country. His motivation and personal circumstances are somewhat beside the point; it is clearly a crime.

As I noted initially, I do not agree with the severity of the sentence but let us not close our eyes to the fact that this person committed a serious criminal offence. What led him to this task is not a "failing" of pain medicine at all, nor legislation unless you are referring to the greater global problem of delivery of health care in general.

Regards.

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» I wholly agree Posted by: nosylae
» RE: I wholly agree Posted by: natasha42
» RE: I wholly agree Posted by: aussidawg
Is this a great country, or what...
Posted by: edraven on Mar 14, 2007 5:10 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I guess he'll be put in a cell next to Rush Limbaugh - - Oh, wait, I forgot, Rush is a victim. Poor Rush was taken over by prescription drugs and couldn't help himself.

So many things in America are wrong, I feel like I was kidnapped and brought to an Evil Empire. Why do we put up with this?

Ed Graham

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raine
Posted by: raine on Mar 14, 2007 6:45 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Gee, I remember former Governor Jeb Bush's daughter writing her own scrips and getting what? three days in the slam and rehab. and she didn't have the severe disabilities that this man has. Guess it's all in "Who's Your Daddy, Now?"

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» Isn't it interesting. . . Posted by: peacefullaim
Chronic Pain......
Posted by: picket on Mar 14, 2007 7:07 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
is severely undertreated in the good ole USA. Uncle Sam keeps a close watch on our Medical Practitioners and they know the consequences of having too many PAIN PATIENTS. It raises a red flag for a visit from the Federal Drug Enforcement Agent. Pharmacists send a monthly report of all the Schedule II prescriptions that are written to the State DEA.

A comment on another site regarding pain following back surgery..."my doctor said he had to stop because the government decided he wasn't qualified to judge what a patient needed when it came to pain medication."

For those "so called" humans with INQUISITOR type mentality just do not get hurt. Personal experience is a good cure for naivety or just plain cruelty.

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» Because, of course... Posted by: JoshuaLudd
» RE: Chronic Pain...... Posted by: cottontail
» RE: Chronic Pain...... Posted by: aussidawg
This is quite a simple thing to understand.
Posted by: JoshuaLudd on Mar 14, 2007 7:28 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Law is far more important than humanity. This is EXACTLY the outcome one can expect to come about eventually when we allow law to be imposed on us by governments that are alienated from those they govern, and this is exactly the state we find ourselves in now not only with our federal law, but also with state law.

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All addicts should be skinned alive, without medication.
Posted by: brotherjonah on Mar 14, 2007 7:36 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
so I figured I should post this where anybody can read it without having to go through a link. This is a reply to an obvious Right Wing Hang Them All freak.
Original message:

Right?

25 years for a pain prescription.

Fuck you, asshole.

You would get a shorter sentence for murder if you have a sharp lawyer, or a well connected lawyer, who can plea bargain it to manslaughter.

Your argument raises the specter of something another right wing freak told me about an 8 year old girl who was hanged for petty theft in England, 1911.

The freak said the CHILD who was MURDERED by the British Crown should have known better, that it was a well known fact that the government would MURDER somebody for petty theft at that time.


The idea that he could have easily found a physician to prescribe the medicine is ludicrous on the face of it, he is, as pointed out, an attorney, He would know that the risks were that great, so if it would be easier to find a doctor to prescribe it, why wouldn't he?

As an attorney he would know that there is really no such thing as "medical care" in prison.

That 25 year sentence is a life sentence for somebody with MS. Maybe that part escaped your attention?

MS is an incurable and fatal disease.

To risk getting the treatment his receiving right now, he very obviously had NO CHOICE.

The alternatives you so smugly ASSUME are there, are not there. CLEARLY not there.

You are a simpering government SUCK UP.

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Mandatory minimums are the problem
Posted by: famm on Mar 14, 2007 7:40 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Richard Paey is another example of the rigidity and injustice of mandatory minimum sentencing laws. Because the prosecutor charged him under a law that carried a mandatory minimum prison sentence, the judge in his case had no discretion to consider Richard's condition and other facts of the case. This resulted in a 25-year mandatory sentence that Judge James Seals called "illogical, absurd, unjust and unconstitutional."

Mandatory sentencing laws prevent judges from considering more appropriate sentences, such as shorter prison sentences, home confinement, intensive drug treatment, etc. Florida taxpayers are stuck footing the enormous bill for Paey's incarceration and medical treatment in prison because outdated laws do not allow the punishment to fit the crime.

By repealing mandatory minimums, people who break the law will still be punished by other tough penalties on the books. But justice can be individualized and fair, taking into account the facts of the case and the person's role in it. Visit www.famm.org for more information.

It will now take an act of mercy from the governor to help Richard Paey. Your letters of support can help make a difference.

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» RE: Mandatory minimums are the problem Posted by: ConnecttheDots
Fla Governor Charlie Crist......
Posted by: picket on Mar 14, 2007 8:05 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
may feel a tinge of Mercy and Pardon Richard Paey unlike former Gov Jeb Bush who was asked before he left office but would NOT grant a pardon.
Let us at least try. Call.....

Main # 1-850-488-7146
Office of Citizen Services... 1-850-488-4441 [can leave message]

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dorap
Posted by: perplexed on Mar 14, 2007 8:46 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
If Richard Paey is in prison why isn't Rush Linbaugh?? This typical Republican double standard.

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» RE: dorap Posted by: Darrell Kern
Governor Crist? Holy crap, this guy would sooner hang Richard
Posted by: DaBear on Mar 14, 2007 9:35 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Governor Crist doesn't sound like the kinda guy I'd expect much sympathy from. Sounds like a typical rich white guy.

Paely is screwed.

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Only two independent branches of government left.
Posted by: aethr on Mar 14, 2007 11:14 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
"... the court let stand a decision which essentially claims that the courts have no role in checking the powers of the executive and legislative branches of government when an individual outcome is patently unjust."

In other words, the judiciary is not an independent branch of government, but is entirely subservient to the legislative and executive branches. I wonder, though, who gave the courts the authority (independence) to change our government and remove one of the original independent branches of government? Law is supposed to be about justice, not legalisms. If a particular application of the law is unjust an independent judiciary is not only allowed to set aside the law in the interests of justice, it is required to. The law was, once upon a time, back when we had a free society, intended to serve, not enslave.

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What do you expect from Florida?
Posted by: Darrell Kern on Mar 14, 2007 11:22 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
While forging perscriptions is totally wrong- and no matter what the reason is, it is a criminal offense.

However, given the circumstances and a prior clean record Paely should have recieved probation and a suspended sentance. He also should have been placed on "house arrest" or something to that effect.

Making an example of a cripple is not very noble, and when you consider that worse criminals have recieved lieniency, this case becomes quite shocking to say the least.

It also shows that the "justice" system is failing miserably. The last thing we Americans need is another example of that!

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Why Do Medications Require a Prescription?
Posted by: rfrancis@godisdead.com on Mar 14, 2007 11:57 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
It's his own body, let him do what he wants with it.

Medications shouldn't require the prescription of a doctor. We should be allowed to self-medicate if we so choose.

My body, my choice.

It's illegal cause the assholes in charge want to control our actions.

That is the reason most things are against the law in this country today, the desire of lawmakers and those who bribe them (oops I mean contribute to their campaigns) to control the thoughts and actions of the population.

A fundamental change needs to occur in our society, actions which do not physically harm another person or another person's property should not be illegal.

Until our society embraces a philosophy of "live and let live" and enshrines it into the Constitution, we will continue to have injustices such as the 25 year prison sentence for this MS patient.

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Court: Dying can be charged for using marijuana
Posted by: fanny666 on Mar 14, 2007 1:01 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Drug War Insanity

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Crist has ties to Straight,Inc.
Posted by: spacecadet on Mar 14, 2007 1:29 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
In other words Mr. Paey is screwed.

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Who the hell........
Posted by: tap17x on Mar 14, 2007 1:36 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
............, I mean who the FUCK appointed the Florida supremes? Jeb? Hitler? Some other nazi? The man's crime is VICTIMLESS! So what if he forged a prescription! He wasn't selling the goddamn stuff! Is there ever going to be JUSTICE in the US as opposed to legalistic inhumane bullshit? I feel like strangling the assholes who sentenced the victim!

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BRING HIM BACK TO NEW JERSEY
Posted by: VZEQICVA on Mar 14, 2007 2:45 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
The compassionate conservatives have turned out to be medieval barbarians. This will appear in newspapers and on the web tomorrow all over the world. Ever wonder why no one likes us anymore. My heart goes out to this guy. He not a criminal. He needs a politician to go to bat for him. Someone probably will. Thanks, ANNA

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anonymous
Posted by: lsafe on Mar 14, 2007 2:59 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Might it be possible to get a direct comparison of this man's "mis-use" of drugs and the law and Rush Limbaugh's, and a comparison of their "punishments"?? Weren't both in Florida so it would be comparing oranges to oranges, right?

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this article was horribly written
Posted by: lawstudent08 on Mar 14, 2007 7:26 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I saw the headline on Alternet's home page, and I clicked on it, expecting to read an article about the crime he was convicted of, the sentence, and why the situation is unjust. But she bounced all over the topic without a basic explanation of the facts. This article was written with the assumption that all its readers already knew about the conviction, because the author didn't even explain the charges or the circumstances behind them, other than alluding to surveillance for selling pills and the 25-year sentence. Maybe I've gotten used to reading court opinions, since it's practically all I do as a law student, but this article blew. If she's accurate, I'm on the author's side, too. But she didn't tell us enough to really judge for ourselves whether he deserved his sentence or not. How many prescriptions did he forge? How much medication did he obtain illegally? I finished the article with the same basic questions that I had before I read it: Who?What?Where?When?How?

Is it just me or has Alternet's quality of journalism gone downhill over the past few months?

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He's Getting His Meds Now At Taxpayer Expense
Posted by: hole11 on Mar 14, 2007 8:12 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
WTF is this an insane society that needs lithium. Call a doctor and make a damn appointment. That is sick to put him in jail.

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This is about Alcohol.
Posted by: WitchyNy on Mar 14, 2007 8:25 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
The message here is...drink booze- like President Bush.
Pot is bad...all drugs are bad. Booze is good, legal, you can buy as much as you want and no one will bother you.
The addict always defends his own addiction.
And this government is made up of a bunch of drunks.

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Major factual error in your subheading
Posted by: andyc on Mar 14, 2007 11:50 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
It has been quite a few years since anyone outside the USA, or quite a few folks inside it, have regarded it as a "decent, humane country".

Sort yourselves out. Fast, please.

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ElRoho
Posted by: ElRoho on Mar 15, 2007 7:28 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
First, I object to the term "supreme court"! The real Supreme Court will have the last say for these "justices" or "in-justices". My wife has MS and the pain is incredible, she takes so many meds for the pain, that sometimes she can just sit and watch paint dry! When she is lucid she cries for relief! MS can be such an insidious and painful disease, my wife says her feet feel like walking on broken glass! She has difficulty holding her grandson! So what I'd tell the Florida "supreme court" is, you're not THE supreme court, and you will pay the price later!

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Rush Limbaugh????
Posted by: LeaderofMen on Mar 15, 2007 8:50 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
What the f*ck! Rush Limbaugh is still on the air. This guy is in jail for basically the rest of his life.

Perhaps it's because Limbaugh is a Republican.

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Decent, humane country?
Posted by: driftwolf on Mar 15, 2007 3:09 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
But... the USA doesn't HAVE a reputation as a "decent, humane country". Not any more. It did once, many years ago, when the inscription on the Statue of Liberty still meant something. But it hasn't for quite a few years now. Having travelled a lot, to many different countries, I can say that the USA currently has a reputation of being very rich, but also the reputation of being a unfeeling, self-centered bully of a country that imposes its will on others through government sponsored economic or military extortion. THAT is the reputation the USA has.

This type of insane, unfeeling punishment isn't an exception anymore, it's getting much more common. The whole American "war on drugs" has created the beginnings of a police state, and it seems that too many Americans are blind to it because right now they aren't the ones directly affected.
However, just remember Rev. Niemoller, who in 1945 wrote:

First they came for the Communists,
and I didn’t speak up,
because I wasn’t a Communist.
Then they came for the Jews,
and I didn’t speak up,
because I wasn’t a Jew.
Then they came for the Catholics,
and I didn’t speak up,
because I was a Protestant.
Then they came for me,
and by that time there was no one
left to speak up for me.

Because that's how a police state starts folks.

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» RE: Decent, humane country? Posted by: fanny666
Drugs Should Absolutely Be Legalized
Posted by: BobbyGreyFriar on Mar 15, 2007 8:53 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Whereas there is no evidence that making drug use a crime curbs addiction, and in spite of the fact that single deadliest drug is legal, there is ample evidence that drug laws do tremendous damage. Besides, one ought to have the right to become a drug addict if one wants to -- life can be so bad that many are probably better off on drugs, whether for physical (as in this case) or emmotional pain. In addition to euthenasia, drugs are an option I would want available to me should the need arise.

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rush
Posted by: insulaparadigm on Mar 15, 2007 10:29 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I just wrote the Governor twice from 2 diff emails... and just wrote Rush to ask him to take up the cause.... I'm gonna look into calling into his show as well. Both in FL.
Donating more money to the legal defense.

I know people who can barely sleep due to their pain, I lost someone close to me partially due to that person's battle with chronic pain.

They are in the process of developing oxycontin with an antagonist to prevent people from crushing the pill (and getting high) If only they'd done this first. We need more research and more needs to be done in this area.

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It's not the Judges....
Posted by: gellero on Mar 16, 2007 12:19 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Don't blame the Judges....their hands are tied re sentencing. Blame the young NAZI prosecutors......both liberal and conservative, who believe getting a new notch on their dick will move them up the political ladder.

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ugh
Posted by: sourtster on Mar 16, 2007 7:01 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Thank you for contacting Governor Charlie Crist. The Governor appreciates your concerns regarding Richard Paey’s criminal conviction and incarceration. The Governor Crist asked that we respond on his behalf.



As you may know, the Florida Constitution limits the Governor’s intervention in criminal court cases. Each state attorney is an elected official charged with certain discretionary duties, including the duty to determine whether or not to prosecute any particular crime committed within his or her jurisdiction. This decision is based on the quality and quantity of the evidence of guilt shown, and in the best interest of justice. Questions about the guilt or innocence of prisoners, mental capacity to commit a crime, or the procedural fairness of their convictions must be addressed in the courts. Those who wish to contest judicial rulings should speak with an attorney about what appellate procedures may be available.



Decisions over prisoners' movement within the system, rehabilitative or educational programs, temporary release permission, and incentive gain time are under the authority of the Department of Corrections. The Florida Parole Commission, an entity independent of the Governor's control, determines the issues of control release and early release.



The clemency function is a power to grant full or conditional pardons, restore a felon's civil rights, or commute punishment. There are complicated rules for these lengthy procedures, and these powers are vested in the Governor only with the agreement of two Cabinet members who are also statewide elected officials. Clemency for prisoners is seldom granted, as it is necessary to await the outcome of court appeals. For more information, you can write the Office of Executive Clemency at Building C, Room 229, 2601 Blair Stone Road, Tallahassee, Florida 32399-2450.

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What an immature, mindless, f***ed up country you have
Posted by: Aussie Kim on Mar 19, 2007 11:37 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
You refuse to let people die with dignity (with parents like Terry Schiavo's, who needs ebola?) and you refuse to let people live with dignity (why don't you just execute this poor guy? - it'd be a kinder way to go)

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Chronic Pain: the Betrayal
Posted by: Ian MacLeod on Mar 20, 2007 11:26 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
The Betrayal: Chronic Pain

You wake up one morning and your left leg hurts terribly. Maybe you did
a little too much on that first day of Spring lawn work, but it hurts so
badly you can put almost no weight on it at all. You take some aspirin
and wait a few hours hoping it will get better, but it doesn't.
Finally, you break down and, because it's a weekend and your doctors office is closed, you go in to the emergency room,

The doctor there sends you to x-ray. When he finally comes back in to the little ER cubicle, he tells you that your x-rays are fine. He suggests you take some Motrin and says to take it easy for the weekend. You tell him it's all you can do not to scream - there must be something very wrong; there must be other tests that can be run.

"I've run all the routine tests; there's nothing wrong. You probably just pulled something. I'm not about to give you narcotics for a pulled muscle". He says.

"Doctor, you're not hearing me. This pain is terrible! It can't be just a pulled muscle! I've had pulled muscles before."

Your ER doc has lost interest, and he isn't going to argue. He won't give you anything stronger than what you've already been taking, even though you tell it hasn't helped at all, or do any more tests. He gives you a prescription for something you can get over the counter, and because you tell him you hurt too much to drive, he calls a cab for you. It takes you almost half an hour to get from the ER gurney to the cab. You go because you have no choice. You hope your regular doc will do something about this.

Meanwhile, you owe $400.00 for no help at all. Meanwhile, you have a vague feeling that you've done something wrong.

Unknown to you, the ER doctor has added a note to your chart: "DRUG SEEKING BEHAVIOR".

You don't sleep for more than fifteen minutes at a time the whole weekend. You call your doctors office first thing Monday morning, but he can't get you in before Wednesday afternoon, even though you tell him you can't even get in to work. Three days pass like three weeks.

You hobble into your doctors office bent over like Quasimodo. Your doctor has the ER report.

"The emergency doctor says you were trying to get narcotics. What's up?"

Mystified, you tell him you've never had pain like this before. You tell him the other doctor just poked around and took x-ryas. You tell him you haven't slept more than a few hours in five days. You pour out your fears and your concerns: how will you work? How will take care of everything in your life that needs your attention, like your children, your wife?

"Well, look - I can't just hand you a bunch of narcotics for an injury that I have no proof of. Let me make a call." He goes away for a while. When he comes back, he says, "I've got you scheduled for a EMG and an MRI in three weeks. Let's see what those show." He gives you a prescription for thirty Tylenol 3 tablets. It turns out that three or four of them actually help; not much, but at least you get a little
relief. You take them only when you're ready to scream from the pain and cry from the lack of rest. When you call in to ask for a few more, your doctor is alarmed and refuses. You have eight days to go before the test, and of course the people doing the test can't do anything to
relieve your pain, so that means you have to wait until the radiologist and neurologist read the tests, plus however long it takes to get back in to see your own doctor.

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Chronic Pain: the Betrayal Part II
Posted by: Ian MacLeod on Mar 20, 2007 11:38 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
"What do I do between now and then??", you ask. "I can't go to work, I can't sleep, I can barely get to the bathroom. I can't live like this!"

"Well", he says, "There's nothing I can do about that. You'll just have to grit your teeth and cope as well as you can. I don't like this; you're acting like an addict." He says.

"I'm acting like a man in desperate pain!", you tell him, but he has other patients to see.

This is the first betrayal; the long, long nightmare has begun.

Three weeks is too long. Finally, in desperation, you go in to three other emergency rooms, and one doctor gives you another handful of weak Tylenol with codeine. You get a couple hours of blessed rest from them, then they're gone. Your boss wants to know what's happening, and
there's really nothing you can tell him. He lets you take annual leave, but says he wants a letter from your doctor when you get back.

The EMG test shows some "mild" neuropathy - meaning something wrong, but not much - and the MRI shows multiple disk bulges - not herniations. You almost cry in relief until your doctor tells you that 30 percent of men your age have these and have no symptoms at all. There's certainly
no evidence there to show that you're in as much pain as you claim. He won't do anything for the pain, and feels that the tests don't justify his writing an 'excuse" for you full three weeks of absence from work, much less call for an operation.

You realize that your doctor has called you a liar. He doesn't believe that you hurt as much as you say you do, and he's obviously sure that, despite no previous record of drug abuse, you're angling for powerful narcotics. You feel humiliated.

Your boss is NOT sympathetic, and you still can't work. You ask to see another doctor, but your insurance won't cover it. Eventually, you lose the job., and the insurance

Your wife, meanwhile, can't believe that you're allowing a little back trouble and leg pain to ruin everything you've both worked so hard for. She says, "Look - I've had back pain and hemorrhoids every since I delivered YOUR children,and I still go to work!" No one seems to understand that the pain is so great it's all you can do to keep from killing yourself - or someone else. She especially can't seem to stand seeing you on the couch doing nothing. "Take out the trash at least!", she'll say. When you tell her you can't lift the garbage can, she says, "My God, what a baby! I can't believe this!"

Eventually, she leaves, taking your children with her. She's not about to support a malingering husband. It's YOUR job to support her, if anything. Worse, you feel this way yourself, but you just can't do anything about it.

You apply for Social Security Disability. Everything to do with it takes months, and when you try to find a lawyer to expedite things, you find that none will take the case until after you've been turned down at least once.

As time passes, everything you loved to do is taken from you by the pain. Everything you defined yourself by is as far beyond you as the moon. You're beginning to wonder who you are; you don't really know anymore.

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Chronic Pain: The Betrayal, Part III
Posted by: Ian MacLeod on Mar 20, 2007 11:41 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
While you're waiting on Social Security, you try a VA hospital; they see you, but it takes nine hours, you get thirty seconds with the doctor, and another Motrin prescription. The eligibility department says that's all you're eligible for. You try the county hospital, but they won't prescribe for addicts, which your record now states you are. Besides, there's a fellow with a sliced artery in at the same time as you, and all five
doctors are in watching him and his treatment. The one doctor who finally spends five minutes with you says it's a back strain, and to go home, rest and take some Motrin. She's not interested in how long you've been like
this, or that Motrin does nothing. She walks out while you're still talking.

Social Security turns you down on the grounds that you're "cured". How they decided that you have no idea, but it's done. You appeal, and this time you find a lawyer who will take the case on contingency.

While you're waiting, you find a VA hospital that will do much more than the last. It takes almost a year, but they do a CT scan. It shows little, but it shows enough that they decide to do an MRI. Each time you go there you have new doctor. Some give you a handful of pills, some give you nothing. One writes about your, "narcotics addiction". You fight this with administration, and they change it; the doctor involved seems hurt.

You are, meanwhile, sent to orthopedics (they find nothing wrong), drug rehab (they say you have a pain problem, not a drug problem, but no one listens), psychiatry, who decides you're depressed, and gives you a medicine you can't stand - it makes you feel "weird", and makes the pain harder to handle.

The MRI shows multiple bulges that are pressing on nerves, and pieces of desiccated disk material wedged into nerve roots. The surgeons consultation comes to the conclusion that there is no operation that would help; you'll just have to "live with it". You assault one self-righteous doctor who tells
you that narcotics are a tool of the Devil, and you're a wimp who'll just have to learn to live with it. Perhaps you'll learn years later - after the pain transmitting nerves have proliferated and your nervous system has rewired
itself to make the pain permanent - that they could have operated to remove the pieces of disk and do other things that would remove the pressure from the nerves. You wish the doctor you assaulted had been right - you'd happily
make a deal with the devil to get out of pain.

All in all, you get maybe two weeks worth of pain pills a month, and have to make them last three months.

You've lost your home, your family, your job, your car, your dignity, your self image, and even contact with your children. Their mother doesn't want them seeing you "like this", meaning living almost like a street person, always
"lounging around and moaning." Even before she left, you had been unable to lift the kids because of the pain. She thought it was very selfish of you.

Old friends have stopped coming around, as has the rest of your family. They get tired of hearing that you hurt, of seeing that you have a hard time moving around. You learn to keep the pain out of your voice, your face, your movements. Often, this is a disadvantage, as doctors you see
tell you that you, "…don't look or act like you're in pain…". The little pride you have left, though, won't allow you to scream and moan. Besides, who can scream, moan and writhe for decades? And a decade is what passes.

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