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Health & Wellness

Being a Reporter with Bell's Palsy

By Amy Goodman, King Features Syndicate. Posted October 31, 2007.


Amy Goodman talks about carrying on with Bell's palsy -- and the other public figures who've kept working during the illness, too.
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Bell's palsy. It hit suddenly a month ago. I had just stepped off a plane in New York, and my friend noticed the telltale sagging lip. It felt like Novocain. I raced to the emergency room. The doctors prescribed a weeklong course of steroids and antivirals. The following day it got worse. I had to make a decision: Do I host "Democracy Now!," our daily news broadcast, on Monday? I could speak perfectly well, and I'm tired of seeing women (and men) on TV who look like they just stepped off the set of "Dynasty." Maybe if they see a person they trust to deliver the news, still there, but just looking a little lopsided, it might change their view of friends and family -- or strangers, for that matter -- who are struggling with some health issue.

Wikipedia, the popular online encyclopedia anyone can edit, stated that I had suffered a stroke. So on Tuesday I decided to tell viewers and listeners that I was suffering from a temporary bout of Bell's palsy, that it wasn't painful and that "the doctors tell me I will be back to my usual self in the next few weeks. In the meantime, it just makes it a little harder to smile. But so does the world."

Bell's palsy affects 50,000 people in the U.S. every year. It is an inflammation of the seventh cranial nerve that connects to the eye, nose and ear. The inflammation causes temporary paralysis of the nerve. For some, the eye can't close, so they have to tape it shut at night, and some can't speak. George Clooney had it. Ralph Nader came down with it in the midst of a speaking tour. He was in Boston debating someone when his eye started to water and his mouth sagged. It didn't stop him. He continued his tour, just beginning each talk by saying, "At least you can't accuse me of speaking out of both sides of my mouth."

I was just in Santa Fe, N.M., interviewing Tim Flannery, voted 2007 Australian of the Year for his remarkable work as an explorer, paleontologist, zoologist and climate-change scientist. Before we went on the stage, I apologized for my crooked smile. He said he knew the feeling, having had shingles, a more painful viral condition that affects one side of the face. I was beginning to feel less and less alone.

The next day we broadcast from the New Mexico state Legislature. The cameraman told me that Ambassador Joe Wilson, husband of Valerie Plame, had just been in. He had been doing an interview with his wife from a remote studio with Larry King. The cameraman told Wilson that I had Bell's palsy. He said that he, too, had suffered a bout of it. I caught up with Wilson after our morning broadcast. He described what happened to him. It was 10 years ago. He had just gotten off Air Force One in Africa with President Clinton. He splashed some water on his face, looked in the mirror and saw the telltale face sag, unblinking eye and mouth droop; he thought he had had a stroke.

Walter Reed Army Medical Center was called, and Wilson was diagnosed with Bell's palsy within a few minutes. Clinton sat him down and said that he had known a number of people who had had Bell's, and that he should just carry on. It would go away. Wilson flew off to Luanda and gave a speech on the tarmac. Later that day, he passed a television set and hardly recognized himself, with his mouth askew. He thought he looked like the actor Edward G. Robinson, a tough-talking gangster speaking out of the side of his mouth.

Even my neurologist once had Bell's palsy, and said I should just keep working, that, with the medication, it would heal itself. Just to make sure, I visited an acupuncturist in New York's Chinatown, next to the Off Track Betting Parlor, hearing that the doctor was a good bet!

I'm happy to report the Bell's palsy is easing up, and I feel fortunate. Fortunate for the waves of support, from the hundreds of e-mails from strangers. A female marketing professor from a Houston business school wrote: "Watching you carry on with Bell's palsy has taught me a little bit about myself. In real life we encounter people with physical imperfections all the time. Why are we shielded from seeing people with flaws and imperfections on TV? Reporters and anchors on TV news, especially women, typically look as if they just won a beauty pageant or a modeling contest, which seems to add to the disingenuousness of their messages."

I feel fortunate to have good health insurance, yet feel unfortunate to live in a society where other people's access to health care is subject to the whims of fortune. The hardest part of this temporary bout has been how tough it is to smile. It has made me realize what a precious gift a smile is. It reminds me of the world's most famous smile, or, actually, half-smile, the Mona Lisa's. Perhaps even she had Bell's palsy.

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Amy Goodman is the host of the nationally syndicated radio news program, Democracy Now!

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valuabe lessons here
Posted by: Drclaw on Oct 31, 2007 12:32 PM   
Current rating: 3    [1 = poor; 5 = excellent]
Its good this is getting some exposure. My wife's experience with BP illustrates a number of the points raised here, and a few others.
1) BP is common, but poorly understood. It is often mis-diagnosed as a stroke. It took an emergency room trip (spinal tap) and several visits to a neurologist before it was properly id'd. The onset of symptoms in my wife was not as dramatic as here-it started with a loss of balance as a result of poor coordination in her leg/foot. Foot-drop is often one of the earliest symptoms, and easy to recognize and test for if you know what you are doing.
2) Doctors do not know everything, but often claim they do. The first neurologist we saw stated flatly there was nothing wrong and my wife was a hypochondriac. She failed to administer a very simple test of peripheral reflex function (you know-the one where the doc taps your knee with a rubber mallet) that is a very clear sign of BP. On the other hand, we had to undergo several useless (and expensive) tests of muscle function before any doc did the most basic reflex test. Early treatment is important-damage can in some cases become permanent if corrective action is not taken relatively quickly, so the lack of knowledge here is dangerous.
3) My experience, both as a teacher of med school bound students, and with doctors directly, suggests many of them really are high priced auto mechanics with little skills in logic or deductive reasoning. As a result, the reliability of these two types of "professionals" is about the same.

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Good for you, Amy!
Posted by: quitecontrary on Oct 31, 2007 1:07 PM   
Current rating: 5    [1 = poor; 5 = excellent]
As a fellow Bell's Palsy sufferer, I applaud Amy's dedication to keep on working in the public eye.

I got mine in February, a "profound" case according to my doctor, and I'm still dealing with residual effects that may never go away. I'm a professor, so speaking and animation are important, and I have to agree with Amy's last sentiments, that you don't realize how important your smile is until it is compromised. Or, as I like to say, has some added character.

One thing that I'm ashamed to say I did at first was to apologize for my appearance to my students. For the first few days, I was so insecure that I didn't know what else to do but apologize. Then I realized that as long as I could teach a good class and be a good mentor, it didn't matter what I looked like. I was just glad that I hadn't had a stroke, which is what I thought at first! I eventually got a great sense of humor about it, blogged about it, and even made an emoticon! ;-,

My Bell's has taught me a lot, mainly that you shouldn't judge people by appearance. After getting lots of rude comments from complete strangers (really, my eye and mouth were terribly droopy, almost deformed) I understand now that maybe that creepy looking guy you pass on the street just has a medical condition. I know, because I was that creepy looking woman.

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» RE: Good for you, Amy! Posted by: duhknees
johnny hempseed
Posted by: Johnny Hempseed on Oct 31, 2007 2:33 PM   
Current rating: 4    [1 = poor; 5 = excellent]
Thanks for this ,Amy I think you are an American hero,and damn ,with this dial up connection,you have always looked like you have Bells'Palsey ...excuse the snark. Never the less an acupunturist is a good bet.I had a bout of it along with twitching eyelids and droopy lips.Worse yet in the area of facial paralysis are spider bites! I once had a spider who lived in the Moose horns mounted near the balcony of my sleeping loft.He would bite me between the eyes on Friday nights,presumably to get a buzz.I would swell up so bad .With both eyes almost swollen shut and a face so numb ..I looked like i had just gone for mega-bo tox treatments .Hang in there girl,you still have cute dimples! peace out

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our own prime minister has it
Posted by: dratom on Oct 31, 2007 6:00 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
did you know that former Canada Prime Minister Jean Chretien had Bell's Palsy? it's very obvious on his appearances in the media

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I had it too
Posted by: VesicaPiscis on Nov 1, 2007 4:36 AM   
Current rating: 4    [1 = poor; 5 = excellent]
at a time when I was working at home. The first two weeks were most uncomfortable due to an unblinking eye, but I found relief in saftey glasses that formed a humidity chamber. As a distraction, I went out a GOT a job selling plants at a specialty conifer nursery.

With BP, occassionally one's hearing imodulation is affected - regular decibel sounds are normal but louder noises are terribly amplified. People must have been so puzzled by the goggles and ear protectors that they never noticed the droop.

Keep a stiff upper lip Amy!

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I should add
Posted by: VesicaPiscis on Nov 1, 2007 4:53 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
that my husband's sense of humor saw me through it. When I woke him that morning to tell him I had BP, he stared at me a moment, patted my hand and suggested I not be so down in the mouth about it. Later we had a little fun with the camera:
http://home.att.net/~lyravega/fe/facialeffects.htm

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Kris at WellAware
Posted by: wellaware lec on Nov 1, 2007 7:09 AM   
Current rating: 3    [1 = poor; 5 = excellent]
Amy is one of my heroines for all time, and I wish her only the best and highest good around her always.
I am a neuromuscular therapist in the Midwest and have clocked in about 90,000 hours of bodywork in my career. I have helped two people with Bell's Palsy who were at the very beginning of the onset. Neither of them ended up developing the full-blown Bell's Palsy symptoms, at all. The inflamed nerve is partially caused by very tight muscles in the neck/upper back which decrease circulation to that same nerve/area of the body and make it more vulnerable to various and sundry problems, one being Bell's Palsy. Effects of strokes also are very significantly ameliorated through excellent, advanced neuromuscular therapy techniques. It is tragic that this is not told to people who are diagnosed with these.
Colloidal silver is also immensely important as a help in any bacterial or viral involvement, available at most organic and supplement stores; the smaller the colloidal particles, the more effective it will be. It is NOT a long term supplement. It is one of the staples in my home self-care "kit" and I frequently recommend it to clients, and I was able to head off shingles once by generous quantities of this, garlic, olive leaf extract, and a "zapper" which delivered a frequency against viruses. You can also purchase a colloidal silver generator and make your own, as it's so important to have it around always, especially in these times, and it's pricey.
If you wish to find an experienced neuromuscular therapist in your area, call 1-888-NMT-HEAL, to get some phone numbers and names of some or at least one in your area, if there are any. There is a huge range of their skills, so shop around if you don't get results with the first one. If you want to email me for more info, or make an appointment, contact info is 608-ALL-LIFE or welaware@merr.com.

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Paging Captain Deakins...
Posted by: goldmarx on Nov 1, 2007 7:35 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Many people (including myself) first heard of Bell's Palsy when watching an episode of "Law and Order: Criminal Intent" several years back.

The actor, Jamey Sheridan (who plays Major Case Squad's Captain Deakins) had a case of BP, and decided to have his character have it as well, making it a minor plot point. He wore a Moshe-Dayan-like eyepatch.

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Thanks Amy Goodman
Posted by: Vick'schick on Nov 1, 2007 10:38 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
No one talks about BP! Thank you for doing so. I had a very debilitating bout as a young child with no residual problems (I also contracted shingles during law school and that was a nightmare!). My husband, on the other hand, contracted BP as an adult and still suffers from watery eyes, especially when he eats, and other minor but annoying symptoms. I appreciate any awareness that is brought to this illness.

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BE AWARE
Posted by: BobbieT on Nov 1, 2007 11:21 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Bells' Palsy is often the first overt symptom of Lyme disease. Do some research, Lyme disease is something you want to catch as soon as possible if you contract it.

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The many faces of disability
Posted by: gerardhsd on Nov 1, 2007 12:51 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Thank you Amy for sharing your experience with Bell's palsy. I also have experienced it and though it took a while, did recover. I am proud of you for continuing to carry on with your show and all of its rigors during this time. I also have a neuromuscular disability called spinal muscular atrophy which I have had since birth. I have been in a wheelchair since the age of four and am now in my 50s. Many people have a perception of disability as something that is awful and allow that perception to block them from seeing the real human being that is there. When people just looked at me, most of them see the wheelchair. Some of them go no further. Others who get to know me and all my work and my accomplishments totally forget I have a disability. In spite of the limited facial paralysis, you allowed Amy Goodman to continue to be Amy Goodman and allowed her to do what Amy Goodman does... Being one of the most incredible reporters the world has ever known! You have always inspired me and my wife with your courage and Bell's palsy is nothing more than a bump in the road.

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Thank you Amy
Posted by: Schroeder on Nov 1, 2007 6:22 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I try not to miss watching Democracy Now as I feel it's really the only daily news there is. Thank you for being such a wonderful journalist - for your integrity and dedication to bringing the truth to the American people. You deserve a medal of honor...from a real president!

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June
Posted by: Trixie on Nov 1, 2007 9:27 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I was advised once that if I wanted to enhance my appearance, I should say (three times) when looking in the mirror each day to wash my face or apply makeup,

May the beauty of my spirit shine in my face for
all to see so that I may be loved as my soul deserves.

Amy Goodman would be beautiful if she looked like the "witch of Endor," for while she is physically an attractive woman, it is obvious that the real source of her beauty does lie within.

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Amy G.
Posted by: bobtr900 on Nov 2, 2007 10:45 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I am sorry to hear you got Bells palsy.

Amy I will take you any day over the right wing plastic phonies no matter what you have. Amy, you with a sagging lip are way far better than any lying big headed plastic right winger.

Some disability is in the future of almost everyone. Very few people are totally healthy until the day they die.

What all politicians need and especially right wingers is a dose of reality; the reality their money allows them to escape only works for so long.

I sometimes think that all right wingers and especially including right wing religious leaders like the Pope and Pat Robertson, Dobson, Hagee et.al, and others like Tim Russert, Chris Matthews, Tucker Carlson, Glenn Beck, Joe Scarborough, Scalia, Thomas, Roberts and Alito, et.al, would benefit from a reality such as living in Iraq for a month and walking the streets with no more protection than the average Iraqi has, which is none.

And the aforementioned all claim to be Pro-Life and family values. All of them are a bunch of hypocrites.

If they won't do that exactly why are they supporting the Republican Party of 'profits at any price no matter who dies'.
If they refuse a month in Iraq just remind them that the Iraqi people will be living this kind of life for a long time to come.

Also a month at some place like Galludet Univ for the blind would be another experience they must have as they continue their 'agenda of the wealthy' and against the rest of us. A month with the blind would put a little humility in their hearts and maybe they would be at least a bit less GREEDY themselves and cause them to support the GREEDY Repukes a bit less. Probably not...

Right wingers can dish it out but they CAN'T TAKE IT. The rest of us have been taking their crap since the Pope and his brethren Jerry Falwell gave us and the entire world Reagan and the Repuke Party, then and continuing now.

I am glad I am not their kind of Catholic.

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To Amy
Posted by: sullky on Nov 3, 2007 11:51 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
From the bottom of my heart -
It's good to have you with us.

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THANKS AND BEST WISHES-SMILING WITH BELL'S PALSEY
Posted by: drricklippin on Nov 3, 2007 1:02 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Amy-

Thanks for the personal disclosure, the education and the courage to continue your work.

Glad the hear you are improving.Glad you are using both traditional allopathic medicine AND alternatives- a good lesson for ALL patients.

But the best "smiles" I have ever seen as a Doc-albiet a romantic one- are with ones eyes and with ones heart.

Dr. Rick Lippin
http://medicalcrises.blogspot.com

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That's Amy Goodman.
Posted by: Mr. Heathen on Nov 4, 2007 12:35 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Could you imagine Jane Whatsername, or any of those commercial ass-hats, doing what Amy is without their Paris Hilton smiles to cover the gaps in their cute little headlines.
I can sympathize with Amy. But, I feel more sorry for all the people in the world who still don't know what good democratic media looks like.
Here's lookin at ya, Mona.

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Lyme Disease can cause Bell's Palsy
Posted by: B. Spoon on Nov 6, 2007 1:57 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
A friend had Bell's Palsey. Turns out it was caused by Lyme disease, which was (and is) treatable and curable. Another friend had to force the doctor to do the test (because the doctor didn't want to). Have you all been tested for Lyme disease?

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Thanks For Your Candor Amy -- It Takes Me Back
Posted by: thatnewsguy on Nov 6, 2007 10:51 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Amy your timely post takes me back to my bout with Bell's Palsy in the fall of 1988 just as I had stopped work and started graduate journalism school.

My first thought, I had a stroke overnight as I gazed at my contorted, drooping and tingling face in the mirror. Being a husky black man in my early thirties I was convinced stroke. My immediate fear was financial and not my face. I was not working -- a full-time graduate student -- I had no company provided health insurance to pay for whatever I was experiencing.

But being a graduate student at Northwestern University was a godsend. The inexpensive student health premium required by the university -- returned thousands of dollars in top-notch medical care. The folks at the student infirmary (Searle Hall) recognized my Bell's Palsy the moment I walked in the door. They did not waste an hour whisking me to Evanston Hospital. The medical team went into overdrive searching for a cause. Bottom line my neurologist finally determined I had taken a wack to the back of my neck area (although I could not pinpoint a specific incident).

Thank God, by the time my reporting in Washington, D.C. quarter came in March 1989 -- I had beat the Bell's Palsy. My mug was presentable enough to do the on-air work required to complete my MSJ. Now many years later, it is not easy to detect I had Bell's Palsy. But when I look closely, I can spot the lingering evidence.

I will pray with you and for you Amy that God gives you a rapid recovery.

A final note, I developed Bell's Palsy a week or so before Thanksgiving 1988. Trust me, when I not in class I just wanted to be alone in my Chicago apartment -- away from friends who knew me well and my new-found graduate classmates.

As Thanksgiving 2007 approaches, I am reminded of two college friends, and now a married. Allyson and Charles, insisted I spend Thanksgiving Day 1988 with them. They refused to take no for answer. I will never forget how they picked me up and took me to a huge Thanksgiving buffet at the then Hotel Nikko.

I could feel people looking at my face -- and I think Allyson and Charles felt them looking too. While my face looked a mess -- I also had great difficulty controlling my mouth to eat and drink like an adult. Plus the heavy-duty regimen of steroids had me out of sorts. But my crew did not make me feel weird in the least. Allyson and Charles celebrated my presence with them by carrying on our usual lively talk, gossip, laughter and our "eat till you drop" grazing. I will always remember Allyson and Charles for just being Allyson and Charles.

Amy, I sure hope you have a host of "Allysons and Charles" in your life. I am glad and blessed I had two "unconditional" friends when I needed friends most. Friends who will never know how much their "Thanksgiving kidnaping" lifted my spirits and helped to repair my battered psyche during my Bell's Palsy struggle.

RAM

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