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Health & Wellness

Readers Write: Lessons From an Emergency Room Nightmare

By Heather Gehlert, AlterNet. Posted December 27, 2008.


Medical misdiagnosis is alarmingly common and potentially deadly. AlterNet readers discuss this and other pitfalls of America's broken health system.
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About 16 percent of Americans don't have health insurance. For them, dealing with an illness often means either getting socked with a costly out-of-pocket appointment or simply going without care. That's a story the media tell us almost daily. What we don't often hear about is the quality of care for the 84 percent of Americans who do have health insurance. For them, seeing a doctor can be both a blessing and a gamble.

Doctors misdiagnose their patients up to 15 percent of the time, according to an article in the May issue of the American Journal of Medicine. And missed or wrong diagnoses account for a full 17 percent of "adverse events" in hospitals, a landmark Harvard study shows. Diagnostic errors can happen just as easily for benign conditions as for potentially fatal ones. Since every person's body is different, telltale symptoms can be present in one person and absent in another, or they could be ambiguous: Strep throat could masquerade as something else; so could cancer.

With Veronica Pollack, it was a heart attack. Or so the physician at her local hospital thought. Chest pains radiating down her arms and certain out-of-whack cardiac enzyme levels, consistent with heart attacks, masked the real culprit: a viral infection. Several mistakes led to a wrong diagnosis, and several more mistakes -- and flaws in the health care system -- kept physicians clinging unquestioningly to that diagnosis for nearly a month.

Her husband, Harold, recounted the ordeal in his recent article "Lessons from an Emergency Room Nightmare." The story left AlterNetters in a frenzy, with dozens of readers trying to figure out how the mistake happened (was it physician arrogance? lack of creativity? lack of time?) and how similar mistakes could be prevented (increased physician attentiveness? more knowledge on the part of patients?). In an effort to get at the truth, some readers shared their own health horror stories.

Here's a sampling of what they had to say:

"My experience has been that many health professionals have a very arrogant attitude, both about themselves and toward patients," writes pelican beak. ... "I'm talking about the type of arrogance that doesn't listen carefully to the patient, jumps to unwarranted conclusions, and then doesn't look back to ensure they're not mistaken."

"I agree with Pelican Beak about the arrogance of physicians (as a whole, with some wonderful exceptions)," writes SpiderWoman. "But there is another problem that is well-demonstrated in this article -- a lack of creative thinking."

SpiderWoman continued:

The woman in this article had heart pain, so the ER doctors thought only one thing -- heart attack. It didn't matter that she'd had a viral infection or that she was an unlikely heart attack patient. Worse, though, is the fact that the doctors acted on their presumptions and proceeded with an invasive procedure -- one that was not needed, but placed her at risk.

This is much like my own experience, with the exception of an internist who was actually capable of real thinking and saw that this patient probably hadn't had a heart attack.

How did that internist figure it out? Not with tests or by reading the previous doctors' reports. Instead, he listened to the patient! That had not been done by any of the previous so-called specialists, who thereby missed the real issue, wasted time (days!) to get appropriate treatment to her and performed at least one dangerous and unneeded procedure. 

 

This is a major issue in modern health care, and arrogance is a major reason for its existence and continuation. 

 

 

TheLimit echoed SpiderWoman's sentiments, but with a caveat:

I think there's a strong sliding scale where arrogance is concerned. If you are clearly a well-employed, insured male, you are going to encounter much less arrogance than if you are a woman. If you are poor and uninsured, the arrogance will be in full force. If you are an elderly woman on a fixed income -- or a young single parent, you will generally see much more of it.

 

 

"Because I have bipolar disorder, my symptoms were completely ignored when I had reactions to medications -- I have had three requiring ER trips," writes DivaDeb. "One was to an anti-nausea drug that isn't used anymore (Compazine). I was told I was just 'keyed up.' I told them I know what manic feels like, and this is not it. They gave me a Benadryl and sent me home. I was a nutcase for over a day while that drug left my system -- I couldn't sit still, was twitching and was intensely afraid -- it made me temporarily semipsychotic."


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See more stories tagged with: health, health care, misdiagnosis, diagnostic error, medical mistakes

Heather Gehlert is a managing editor at AlterNet.

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The horrendous state of care
Posted by: lalala on Dec 27, 2008 3:30 AM   
Current rating: 5    [1 = poor; 5 = excellent]
Between pharmaceuticals and denial of occupational hazards my last few visits to the doctor have been terrible. For regular care doctors never have time for a decent examination, they always try to prescribe a useless pharmaceutical and they think the patient is always wrong. I tried to have a mole removed and the dermatologist refused and tried to put me on birth control. It was senseless and creepy. Then my partner was exposed to on the job chemicals and bacteria and got sick. The emergency room doctor refused to run any tests and told her to go home despite the fact that her legs were numb. She ended up having a rare disease that only a just out of med school doctor was willing to determine. I know not all of them are bad but I feel like so many doctors are useless tools.

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PTSD and mental health
Posted by: Lauren on Dec 27, 2008 4:25 AM   
Current rating: 5    [1 = poor; 5 = excellent]
Posttraumatic Stress Disorder (PTSD)

Posttraumatic stress disorder (PTSD) is an emotional illness that develops as a result of a terribly frightening, life-threatening, or otherwise highly unsafe experience.

Approximately 7%-8% of people in the United States will likely develop PTSD in their lifetime, with the lifetime occurrence (prevalence) in combat veterans and rape victims ranging from 10% to as high as 30%.

... women are twice as likely to develop PTSD as men.

Almost half of individuals who use outpatient mental-health services have been found to suffer from PTSD.

Up to 100% of children who have seen a parent killed or endured sexual assault or abuse tend to develop PTSD, and more than one-third of youths who are exposed to community violence will suffer from the disorder.


I have PTSD. I asked Kaiser, my healthcare provider what their mental health care protocol was for handling rape victims. They have none. Up to 100% of people who experience sexual assault develop PTSD and Kaiser doesn't even screen for it.

The symptoms of PTSD are making up a HUGE part of the mental health problems for their patients, but they don't even screen for it? Worse than that, if you TELL them you or a family member has it, they deny it. I find that strange.

Why would mental health professionals flat out eve deny the possibility of PTSD?

I guess it has something to do with handing out hospital oversight positions as political plums. A hospital is a great place to supervise what happens to people who have been roughed up by the police or snuffed for politics. Also good for getting drugs, spare organs and 'regulating' victims of sexual abuse.

Why do I think this?

Because MY health care provider is in total emotional and functional denial of obvious cases of rape and child abuse. They have no protocol because their policies deliberately look away from this obvious cause of distress. Why? What motivates upper management to set such policies?

The only explanation for that is they have taken sides. Taken sides? That sounds nuts! What am I talking about?

The war between the sexes. Younger people might not have heard about this one, it was more common to talk about in the last century. It is the idea a man owns his wife's body and her natural resentment of such treatment. It is the culture war.

When it manifests in hospital practices with no goal greater than providing for the sexual gratification of the greatest number of men, we are screwed. We are there already, it is hard on the women, teens and little kids that fall victim.

So lets wonder again why the police refuse to take a missing persons report on the age bracket most popular for prostitution?

I'd say the whole job is a massive criminal cover-up, and a conspiracy to commit sexual torture.

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» RE: PTSD and mental health Posted by: badkitty
Write your story and send it to www.chang.gov
Posted by: blondesprite on Dec 27, 2008 4:26 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
As many of you may know, Senator Daschle and President-Elect Obama is asking citizens to join the Health Care Transition Team. They want to fix health care from the bottom up.

They want and need you stories. I am a 24 hour care giver for someone with two genetically inherited diseases. I do not have the time or resources to host or hold a house party.

I invited folks I know on the Internet to join an email round table on the subject. We are compiling our stories and coming up with legislative solutions and suggestions. We will upload them at Obama's change site and send a copy via land mail.

Alternet commenters are so engaged and engaging. I know you will all send your stories to them. Keep up the good work!

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RE: Pretty sad
Posted by: Chaimirija on Dec 31, 2008 8:25 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I figure it's profits over people

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MEDICAL FASCISM
Posted by: HANGTRAITORS on Dec 27, 2008 5:37 AM   
Current rating: 3    [1 = poor; 5 = excellent]
organized medical cartel = organized looting

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Is this supposed to be journalism?
Posted by: True2Blue on Dec 27, 2008 6:25 AM   
Current rating: 2    [1 = poor; 5 = excellent]
Yet another biased, unscientific article from Alternet about health care. I'm not sure if any other publication, even most blogs, would cut-and-paste a bunch of anonymous readers comments and call it an "article." Every article that's posted on health care seems to push the same paranoid themes. Be afraid, be very afraid. Of your doctor.

And the 15% "misdiagnosis" rate cited is a gross distortion of the original study result. You might want to read it.

Of course there are doctors who are not good at what they do, just as there are also attorneys, accountants, teachers, plumbers, and clergymen who aren't good either. What is your defence against them? Change doctors. Ask people you know for names of good doctors and dentists. The same way you'd find an appliance repairman.

In an ER, you might not have much of a selection. But it's a free country, and you're free to leave that ER and go right to another ER. Or ask to be transferred to a larger center. Happens all the time.

And of course, the article never mentions studies done by all sorts of organizations that most people are satisfied, and often even happy, with their health care.

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» What a flippant response Posted by: realist
wiseup
Posted by: esornew on Dec 27, 2008 6:34 AM   
Current rating: 5    [1 = poor; 5 = excellent]
Pharmaceutical giants control medical education and practice, add in manufacturers of medical machines. Those are all doctors are taught in med school, then pressured to "sell" in practice. Our gov't enables them. Wise up guinea pigs, it's all about money, not health.

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Health history - help or hindrance?
Posted by: carolcsme on Dec 27, 2008 6:36 AM   
Current rating: 5    [1 = poor; 5 = excellent]
At my doctor's office, a medical assistant would take health history before the MD, FNP, or PA came in. They never read the history, but my mental list for the doctor had been erased and I assumed the conversation was already beyond the "Well, what brings you here today?" stage.

I would leave feeling like I'd been used for target practice - and when I finally sorted it out, they quit taking written history with each visit.

My suggestion: Take the damned history in duplicate, and give the patient a copy to hand to or read to the doctor. (If you skip the oral history, the patient will still have the mental list.)

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True2Blue is both right and wrong
Posted by: g on Dec 27, 2008 6:46 AM   
Current rating: 2    [1 = poor; 5 = excellent]
He (she?) is right when he points out that the article is mostly inflammatory drivel not supported by data, and quite offensive to the medical profession in general. We all have health-related horror stories. Mine come mostly from Italy, my home country, where we have a national health care system that in general works quite well. One of them is a friend who had celiac disease for about 10 years before being diagnosed-- mostly because doctors accused her of being neurotic and having nothing more serious than IBS. Then again--it was a doctor who eventually diagnosed her and took care of giving her the appropriate diet and directions. It is also not the fault of doctors that uninsured people come to the ER when it's way too late because they are afraid to run huge bills.
True2Blue is wrong when he puts the responsibility to choose a 'good' doctor on the patient. If I go to the wrong hairdresser, no big deal. It's not the same with a doctor. How am I supposed to know, with no medical background, if the doctor's diagnosis is accurate or if the tests they are running are sufficient? How am I supposed to make the decision to stand up and walk away from a ER, especially if I am in pain or have been sedated? As for choosing doctors, the ones recommended may not be on your network, or may not accept Medicare or Medicaid patients. It's not as simple as True2Blue makes it sound like.
Doctors have responsibilities. Many of them do a poor job. But let's not blame them for all the problems in our health care system, and, more importantly, let's not get distracted by a few horrifying cases and forget that most medical professionals do a great job with the constraints they have.

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so..
Posted by: jbloggz on Dec 27, 2008 7:02 AM   
Current rating: 1    [1 = poor; 5 = excellent]
Zzzzzz

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saveusall
Posted by: saveusall on Dec 27, 2008 7:57 AM   
Current rating: 5    [1 = poor; 5 = excellent]
The major missing piece in all of the healthcare issues, aside from the lack of time, is COMMON SENSE. Three pathologists concurred in a MISdiagnosis of my situation of invasive breast cancer. And the radiologist, who did both mammograms and sonograms, ignored my comment that I HAD A LUMP, Radiologists do not EXAMINE patients - they ONLY read their screen of images; one would think that a patient's coment about a lump, and the fact that the patient's GP had referred the patient ON THE SAME DAY as the lump had been identified (ie: the GP had felt it) would trigger some CARE AND CONCERN, let alone some COMPASSION for the patient. The misdiagnosis created a 6-month wait for the patient, since I was given the news that "nothing was visible", and therefore I could "come back in 6 months to a year". Since the invasive carcinoma was LOBULAR (this noted for the people reading this comment) IT RARELY SHOWS UP ON MAMMOGRAMS AND SONOGRAMS, and thus the lump was a key more valuable than the imagery. I should have had a biopsy recommended immediately. But patients deal with "stovepipe medicine", meaning that certain doctors ONLY do certain things, and they do not use COMMON SENSE about the situation before them. Jerome Groopman, where are you!!!!.

A friend died of metastasis of invasive lobular carcinoma - mainly because the imagery did not pick up the BC, and thus she waited, and the disease progressed. This did not have to happen.

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Tell Your Story
Posted by: drricklippin on Dec 27, 2008 9:09 AM   
Current rating: 3    [1 = poor; 5 = excellent]
Thanks AlterNet!

In additiion to Obama/Biden/Daschle team where you can post your story on "change.gov", Michael Moore's website is still collecting stories

This is all indicative of a collapse of the current US health care system

It is happenning now.Believe it!

So Obama team most be both bold a creative

Nothing short of the boldness and creativity we are applying to the global environmental crises will carry the day in health care reform

Throwing more $ at at fundamentally and conceptually flawed system is NOT the answer. It will make things worse!

Dr. Rick Lippin
Southampton,Pa

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» sorry mistake on keyboard Posted by: 113121
» RE: Tell Your Story Posted by: Chaimirija
It's not about being afraid - it's about being informed and skeptical
Posted by: DivaDeb on Dec 27, 2008 9:22 AM   
Current rating: 3    [1 = poor; 5 = excellent]
I don't think the original article, or this compilation was about inducing fear for fear's sake. I felt it was more about informing people who may not know that there are alot of cases out there of medical malpractice, in various forms, that harm people (and don't always lead to litigation and change). It's more about being skeptical of a diagnosis, fighting for your rights, because you can, and have someone with you who can speak for you and your wishes - someone who has power of attorney, a spouse, whatever.

This is also the purpose of this compilation of stories shared by alternet readers - we told our stories about our experiences. It is nice to be heard/read. For me, if just one person who read my post changes the way they present at the doctor/ER, direct their own care, take a stand against something they feel is wrong, gets a second opinion, demands better attention or care, then I am glad I spent the time writing about it.

Have a great new year - and don't forget to do those advance directives and powers of attorney.

DivaDeb
Ohio

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» Mistake also Posted by: 113121
corporations have NO business
Posted by: weathered on Dec 27, 2008 9:54 AM   
Current rating: 5    [1 = poor; 5 = excellent]
infecting the art & science of Medicine.

What motivates profit corrupts, its endemic.

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Just one of my ER nightmares
Posted by: maryyooch on Dec 27, 2008 11:07 AM   
Current rating: 5    [1 = poor; 5 = excellent]
I had lost my job about 6 months prior to my medical problem. Not that I had insurance anyhow.
I fell down one step, just one, and broke the bone behind my heel bone and a few bones in my foot. The hospital, of course, knew that I was unemployed and without insurance.
So, they picked the very cheapest way to treat me. Instead of putting a cast or boot on my foot, they put on a splint. The kind that you would put on a broken finger. The splint alone was painful. They gave me a pair of crutches, that were impossible for me to use due to spinal damage. I told them about the problems in my back and asked for a cane instead. To no avail. They told me it was too bad and to use the crutches. I tried and tried to use them but they made the pain in my back all that much worse. They also gave me enough pain medication for two days. Then they told me to go see an orthopedic. How do you get to see an Orthopedic Doctor without insurance or money?
Well, now it has been about 7 months since I supposedly healed. I never did get to go to see an orthopedic.I believe that it did not heal right. If I step on my foot the wrong way, the pain is excrutiating. If it is too damp, humid or raining, it swells up and is very uncompfortable. I tried to go to the Metro hospital that goes by a sliding scale, but could not be accepted because I could not come up with the proper documents. My house had burned down, with all my belogings, including paperwork, that is difficult and expensive to replace.
So, there you go. Just ONE instance of ER bullsh*t. I could name quite a few others, but that would take a whole book to fill up.

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» Take some responsibility Posted by: gellero1
» RE: Take some responsibility Posted by: Quannah
All too often...
Posted by: taisamarie on Dec 27, 2008 12:53 PM   
Current rating: 5    [1 = poor; 5 = excellent]
Several years ago when I was 23, I collapsed in pain; my husband found me and brought me to the doctors office at the university I attend, since we didn't have insurance. He listened to my symptoms and looked at me, the doctor told me to have my husband drive me to the ER now or call an ambulance. He said it was a kidney stone and causing bleeding. I said the pain had subsided since the morning and he replied that it was because i was in shock.

At the ER I checked in with the nurse, filled out a form and waited. After an hour my husband asked how much longer and I wasn't urgent. He replied "bright red urine isn't urgent?!" I was brought in.

In shock and not responsive to pain, they gave me a shot of morphine which to me didn't feel like anything. After another hour they performed a CT of my kidneys and tract, but not before a finance rep of the hospital said that with no insurance, they wanted a downpayment. I had no idea was a CT cost. They took the $75 that I had in my account and the rep rolled his eyes at me when he heard that was all I had.

The doctor came in and said the stone was 'only' 4mm and he wrote me a prescription for vicodin and told me to see a urologist. I asked if there were any urologists that would see someone without insurance, he replied "only if you pay cash". Arrogance at its finest.

As we left the hospital my husband was handed the bill... $7952. There was no way I could afford to go back to the ER let alone see a urologist. I was in so much pain the next few days that anytime I woke up my husband gave me another vicodin. I was out of the measly 15 pills he prescribed in 30 hours.

No urologist the county would see me without insurance or cash. They just said to go back to the ER, they HAD to take care of me, but didnt. If I had insurance, they would have used a special sonogram to break up the stone because it was likely too big to pass on its own.

Weeks passed by and during them I passed what seemed to be a broken up stone but I still had major pain, blood in my urine and a massive kidney infection. Finally my doctor found a clinic that would see me and they had access to x-rays.

The X-rays showed a large stone still in my tract, but was obscured so they can't tell the size. Without paying for them, the hospital wouldn't release my CT results to compare. With nothing in the clinic to break up the stone, the doctor prescribed a strong antibiotic, and more pain killers.

Both the doctor at the clinic and my doctor at the school, both of which i saw for free, treated me as best they could given the resources available.

Three months after first being diagnosed, I passed a 6X5mm stone, above the size that should have been possible to pass. They were breakage points on it, and I had passed stone fragments. I still had to be treated for a kidney infection for two more months. After a year, my renal function returned to normal.

The clinic doctor finally had fought enough to see my CT scans from the hospital. Only part of the scan was read, the part showing the supposed length of 4mm (which was blurry and likely larger) and part two showing the width of the stone (the part not read) that showed it about 7mm in width. There was also no mention in the report of another stone of 3x5mm. Had the full size of the larger stone been seen when I was in the ER, they would have been forced to remove the stone.

My doctors at the clinic and school told me how lucky I was not to have gone into kidney failure or died. The lawyers I spoke to, bringing letters from both doctors, said the case was tenuous at best and would only take the case if paid upfront.

I still don't have insurance. Still can't afford a lawyer. Still hide from the bill collectors. I still worry that it may happen again someday, before I am able to afford insurance.

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Misdiagnosis happens every day. But here's a danger built right in to the system.
Posted by: Longdream on Dec 27, 2008 2:57 PM   
Current rating: 5    [1 = poor; 5 = excellent]
A good friend of mine, a lawyer in his early sixties, who is well-insured not because he's rich, but because he retired from a 20-year career working for the state of NY.

One night a couple of weeks ago, they rushed him to a hospital in Albany and gave him emergency quadruple bypass heart surgery. He perked up after a few days, and I expected him to recover slowly, but well. Eight days after his surgery, I got a call from him. He was in a Pittsfield emergency room. They had SENT HIM HOME because he had stayed in the hospital the requisite number of days allotted to that very serious heart surgery. He was in the Pittsfield ER the same day Albany released him, with fluid in his lungs.

Be careful. Discharge dates these days have much less to do with your condition or the level of care you need as they have to do with the hospital's bottom line. That's not human error, it's fiscal aggression.

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We need to burn down the current system and start over!
Posted by: Quannah on Dec 27, 2008 6:27 PM   
Current rating: 5    [1 = poor; 5 = excellent]
From top to bottom, the system is more sick than we are.

I'm a cancer survivor. But since I am self-employed, and in this lovely economy, can't afford health insurance, I can't afford the thousands of dollars for the testing alone, let alone any sort of treatment if the cancer were to return. (Never again would I subject myself to radiation or chemo, though... THAT'S the shit that will kill you!)

So if my cancer returns, I die. Plain and simple.

My brother-in-law found out his mitral valve in his was "leaking." No surgeon here would touch him, and in fact told him that he'd be fine for a few years... something he could live with. (He had no insurance, either.) He found a surgeon at the University of Michigan who would do the surgery, so I traveled with them to Ann Arbor. After the surgery, Doctor Bolling came out and told us his heart had been far worse than he thought... and that if he'd known, he probably wouldn't have been able to do anything, as his mitral valve, and the chordae attached to the flap in the valve, were ruptured. As it was, he was able to fix it -- saving my brother-in-law's life.

None of that would have been possible had my sister not brought $40,000 in a cashier's check to put as a down-payment. No insurance or down payment, no surgery. While the surgeon was amazing, the hospital was not.

"Pay-to-play" in health care is a national disgrace.

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Until
Posted by: walldodger1969 on Dec 28, 2008 6:57 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
we take 90% of the profit out of the system we will always have this screwed up mess. Pay the workers a fair wage,pay off the Dr.'s education cost,put everybody on the same page(triage)...it is actually quite simple.

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» RE: Until Posted by: Longdream
it's tough but duck the ER if you can
Posted by: edgar1 on Dec 28, 2008 7:41 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
as long as diagnosis remains a human function, even if aided by radiological, chemical and other lab based analyses, there will be mistakes.

Under the current chaotic health system; under a more rational, equitable(economically) system. and some people will die or be made worse, simply because there is no therapy or time for them to heal.

Utopia is a human dream. We all(well maybe most) want to live much longer in the health we had as youth. Of course some young people have chronic diseases and tragically do not live to adulthood. fix the financial issues for sure. but don't expect mortality rates to drastically fall under Obamacare, except where folks currently receive no healthcare or checkups to prevent future dangers.

Socialism, "yes we can" Obamite platitudes, or Billy Graham style "faith" have never provided eternal life or a more pleasant emergency room experience.

ER is indeed, i agree,is an awful environment, even if licensed physicians are there. The wait is what drives me and others nuts.If you're an adult, not bleeding to death, and don't have a fever over 101, hang on and take a cab or have a companion drive you to a regular doctor. You still may die or be cured, but the mental unpleasantness of the ER will be avoided. Keep a bottle of good cognac availabe for such exigencies. Don' t toss out unused pain killers prescribed in the past. (If you are a pot smoker, I for one am not going to judge you in a time of great discomfort).

Good health to all in the New Year.

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Cancer Killed our son
Posted by: wolfbite on Dec 28, 2008 7:13 PM   
Current rating: 5    [1 = poor; 5 = excellent]
The bills keep comming and comming, the life flight was about 100k, the trip from the airport to Seattle childrens..another 10k, we hadnt even started. The doctors prescibed seemingly any thing the pharmacy had to offer, even expensive cancer treatment the night before he died. Although the doctors stated there was little chance they could do to save him they continued very expensive treatment and dissuaded us from trying any other facilities or programs. it has been over 6 months and the bills keep comming with insurance covering about far less than 1/2 what is billed. If we didnt have insurance we would be better off....it has been very educational

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One of the sources of this problem . . .
Posted by: barbatus on Jan 5, 2009 2:32 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Could the high percentage of medical errors be attributed not so much to arrogance as to an attitude of doctors, who choose their profession not for any humanitarian reasons but simply to 'make money'?

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