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Health & Wellness

Lessons from an Emergency Room Nightmare

By Harold Pollack, The American Prospect. Posted December 18, 2008.


Several people made mistakes in my wife's care. The worst and most deadly mistake was ours.
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I held my wife Veronica's hand as the technician applied cool gel to her chest. At first, the ultrasound images were the fuzzy black-and-whites I remembered from before our daughters Rebecca and Hannah were born. After a few touches to the LCD screen, a breathtaking three-dimensional movie began to run. It featured Veronica's heart, its thick walls beating yellow against a black background.

The technician maneuvered a trackball to reveal the various parts undulating in unison. Colored regions displayed blood velocity and turbulence through the different chambers. Suspended in virtual space, Veronica's heart looked every millimeter the impregnable pump I had always assumed it was.

Veronica is 46, does four hard workouts every week on the stepping machine, eats sensibly, and has a resting pulse of 60. So when she woke me at 2 A.M. and calmly reported funny chest pains radiating to her shoulder blades and down her arms, the obvious came to mind, but it was hard to really believe. Veronica and Rebecca had been coughing and feverish for a week. The three of us had embarrassing cold sores. Acid reflux, a sore diaphragm -- anything seemed more likely than a heart attack.

You need a hard head and a soft heart to manage a loved one's medical emergency. It's surprisingly easy for smart people to be nudged by circumstance and human frailty into doing careless or foolish things. We had two sleeping daughters across the hall. The thought of them waking up to flashing ambulance lights was daunting. We worried about leaving them or dragging them to an emergency room. Still, Veronica had never felt anything like this. We had to do something. So we threw on some clothes, and drove to the 24-hour urgent-care center a half-mile from our house.

***

Several people made mistakes in Veronica's care. The worst and most deadly mistake was ours: going to this urgent-care center. Veronica's symptoms demanded a 911 call. I knew better -- or I certainly should have. I am a certified expert, director of the University of Chicago Center for Health Administration Studies. I've served on expert panels of the Institute of Medicine, no less.

I was swayed to discount what was happening -- Veronica, a clinical nurse specialist, was, too -- by disbelief, by her recent illness, and by her general fitness. We were also swayed by the expected hassle and expense of an ER visit. We envisioned paying a large bill to be prescribed some Tums. Last year, Veronica went out-of-network for urgent care. That cost $700.

In part, we hesitated because that was exactly what the modern health-insurance system is designed to make us do. A quarter-century ago, the RAND Health Insurance Experiment (HIE) established the basic argument for deductibles and co-payments in insurance. HIE remains the most important policy experiment in American history. Its most potent finding was that people who got free care used 40 percent more services than did others assigned to cost-sharing plans. Yet the free care produced little measurable additional benefit for the average patient. These results are often cited in support of co-payments and deductibles designed to discourage inappropriate care. Policy-makers and payers are particularly concerned about the real and alleged over-use of emergency care. Charging higher co-payments is one obvious response.

It seems counterintuitive that demand for ER services would be sensitive to price. If you slice off your finger with a steak knife, you won't be thinking about the money. Yet it turns out that many ailments -- Veronica's included -- are ambiguous, and so price matters. RAND investigators found that individuals in cost-sharing plans reduced ER use by one-third when compared with the free-care group.

Co-payments did discourage wasteful use among HIE participants. ER visits in relatively non-urgent categories such as sprains and back pain were 47 percent less frequent in cost-sharing plans. Unfortunately, co-payments also discouraged appropriate use. Participants enrolled in the cost-sharing plans were 23 percent less likely to seek ER care for "more urgent" problems, including fractures and asthma.

Most patients cannot reliably distinguish appropriate from inappropriate ER use. In many cases, even experts find the distinction fuzzy. I once co-wrote a study of a managed behavioral health plan that imposed a 50 percent co-payment on psychiatric ER visits. Do we really want to impose these barriers? When someone feels that funny chest pain, how long do we want her to dither before seeking help?

Veronica and I made a critical decision in choosing the urgent-care clinic. Your first medical provider in an emergency determines who will frame the initial hypotheses of your illness, who will coordinate your care, and, often, the person who hears the cleanest direct account of what is wrong. I had never been inside this imposing structure, which advertises and charges as an emergency-department affiliate of a local hospital. We arrived to find it nearly empty. The staff promptly took an electrocardiogram (EKG) that looked normal and administered aspirin and nitroglycerin. Veronica took a gastrointestinal cocktail of antacid and lidocaine in case this was acid reflux. It seemed to help, which I found reassuring. They administered a chest X-ray. After bumpy preliminaries, they administered the standard cardiac-enzyme tests.


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Harold Pollack is an associate professor at the School of Social Service Administration, and faculty chair of the Center for Health Administration Studies at the University of Chicago.

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The article didn't mention arrogance
Posted by: pelican beak on Dec 18, 2008 1:05 AM   
Current rating: 4    [1 = poor; 5 = excellent]
My experience has been that many health professionals have a very arrogant attitude, both about themselves and toward patients. They often don't have their act together anywhere near enough to justify that attitude. That arrogance keeps them oriented in the wrong direction to effectively improve their abilities. Medicine is best practiced by humble people. American medicine is short on them.

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» No, they're arrogant Posted by: pelican beak
Cost factors
Posted by: beachcomberT on Dec 18, 2008 3:24 AM   
Current rating: 5    [1 = poor; 5 = excellent]
Not surprising diagnostic mistakes occur in a health-system driven more by cost factors than what's best for the patient. Insurance companies are doing all they can to steer people away from costly tests and emergency-room visits, preferring they go to cheaper urgent-care stations. Besides publicizing mortality stats of hospitals, let's have some mortality stats on health insurance companies. It's relatively easy to find out which ones are making the most money; virtually impossible to find out which ones are doing a good job at saving lives.

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» RE: Cost factors Posted by: Old Skeptic
Arrogance and rigid, uncreative thinking
Posted by: SpiderWoman on Dec 18, 2008 3:28 AM   
Current rating: 4    [1 = poor; 5 = excellent]
I agree with Pelican Beak about the arrogance of physicians (as a whole, with some wonderful exceptions). But there is another problem that is well demonstrated in this article - a lack of creative thinking.

The woman in this article had heart pain, so the ER doctors thought only one thing - heart attack. It didn't matter that she'd had a viral infection or that she was an unlikely heart attack patient. Worse, though, is the fact that the doctors acted on their presumptions and proceeded with an invasive procedure - one that was not needed, but placed her at risk.

This is much like my own experience, with the exception of an internist who was actually capable of real thinking and saw that this patient probably hadn't had a heart attack.

How did that internist figure it out? Not with tests or by reading the previous doctors' reports. Instead, he listened to the patient! That had not been done by any of the previous so-called specialists, who thereby missed the real issue, wasted time (days!) to get appropriate treatment to her, and performed at least one dangerous and unneeded procedure.

This is a major issue in modern healthcare, and arrogance is a major reason for its existence and continuation.

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» Cont..... Posted by: mjabele
» RE: Cont..... Posted by: off-the-radar 2
Rx for doctors and policymakers: Read this story!
Posted by: hagwind on Dec 18, 2008 6:03 AM   
Current rating: 5    [1 = poor; 5 = excellent]
An awesome and brave article. As so often happens, the experience of one intelligent, curious, and honest observer-participant conveys far more truth and insight than dozens of meticulous studies. How many times have I made the wrong (or at least the less-than-best) decision because I didn't want to inconvenience someone else? Harold Pollack notes that he and his wife didn't know how all the area clinics and hospitals ranked on various measures. I don't know the rankings in my area either, and why should we? How much time can we spend gathering information about eventualities that are unlikely to happen to us (but might conceivably happen)? Most of the time our lapses pass without incident. Sometimes they don't.

To me the most important lesson of this story is that the key to a health-promoting health-care system is the existence of practitioners who know each patient as a person, not just as a collection of symptoms, like the internist in Pollack's story. All the expensive machinery and complex procedures in the world can't make up for the lack of such people.

I am so glad to hear that Veronica is recovering. All the way through the article I was afraid that the cumulative mistakes were going to be fatal and that she wasn't going to make it.

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Having read this article, I feel guilty for being a computer programmer and wish humancare would
Posted by: maxpayne on Dec 18, 2008 7:47 AM   
Current rating: 5    [1 = poor; 5 = excellent]
come back for a change. I think that taking technology for granted is what's responsible for what happened to Veronica. Veronica's husband reminded me that at times, we need to simply trust our own great judgements and not rely of "Business Intelligence" to make our decisions.

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» GIGO, Garbage in Garbage out Posted by: Inlander
check lists are such a good idea!
Posted by: ladyoracle on Dec 18, 2008 7:52 AM   
Current rating: 5    [1 = poor; 5 = excellent]
I read that New Yorker article about the checklists, and it makes total sense to me. I was almost released from an ER when I came in at age 28 after coughing up blood after a work out. It turned out that I had pulmonary embolisms, but they onlt did an exray the first time and checked my vitals and I guess blood, and they couldn't figure out any reason to keep me so they were going to give me an antibiotic and send me home when I was in pain with every breath. I head the doctor tell that to my rurse standing a few feet from my room, so I coughed more blood into a kleenex, but instead of throwing it away like they were telling me, I brought it out there to show it to them. A pulmonary specialist who was there to review a different case overhead me and suggested a CT scan, which then showed the clots. They let me walk to get the CT scan, and then after that I got an IV in the stomach and total bedrest for 48 hours. So, they avoided the mistake that would've probably cost me my life, but they didn't take my bood for the hematologist until hours later and then more the next day, after I'd already been on blood thinner. My blood showed no abnormalities at that time, but clearly something was amiss, which is another comment for another day. The point is that what saved me is a second opinion.

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Psychiatric is even worse.
Posted by: DivaDeb on Dec 18, 2008 8:46 AM   
Current rating: 4    [1 = poor; 5 = excellent]
Disclosing mental illness taints their diagnosis - it's all in your head!
Because I have bipolar disorder, my symptoms were completely ignored when I had reactions to medications - I have had three requiring ER trips. One was to an anti-nausea drug that isn't used anymore (compazine). I was told I was just "keyed up." I told them I know what Manic feels like and this is not it. They gave me a benadryl and sent me home. I was a nutcase for over a day while that drug left my system - I couldn't sit still, was twitching, and was intensely afraid - it made me temporarily semi-psychotic.

Wrong meds given, ER blows me off again.
Fast forward 3 years, and the Veterans clinic psychiatrist put me on Ziprasidone. It went from making me go to sleep after one hour to wiring me up extremely and making me unable to sleep and having massive anxiety, - again, having this horrid reaction. Since she was only in once per week, they told me to keep taking the med until I talked to her. I ended up in the ER 3 times in 10 days - and every single civilian psychiatrist asked why the hell I was on that - that it is for schizophrenia/psychosis. Nice. I was unable to work for months, had acute anxiety - and high doses of Ativan didn't make it stop. The ER - all three times - just gave me Ativan, said I was "keyed up" and sent me home, recommending therapy - and none were able to bring up my record from the other times I had been there over the last few days. The reaction is called akathesia - an all-over body reaction. Apparently, this medication has similar properties to compazine - and that reaction/allergy was in my chart at the VA.

Reaction to antibiotic leaves me with 3 month headache.
In 2005, I had a reaction to Levaquin where I felt like I was having a heart attack or stroke, had an instant-onset headache. They eventually sent me home, had to give me Dilaudid. 48 hours later, it happened again and the headache was WORSE. We called the squad and they made a snotty comment about the bruises on my arm - where they tried getting blood from me 48 hours earlier. I was screaming my head hurt so much. The nurse quite snottily said "stop screaming." They said I was having a rebound headache from the dilaudid. yeah. They shot me up with four things I don't know what (even as my husband was yelling at them that I have bad reactions to drugs), and sent me home. I had a headache for three months straight. I was doped up on benadryl, took a beta-blocker, pain medication, anti-inflammatories. They treated me like a drug seeker, and again, would not access my records from just two days before.

I hate the ER.

Underreported medication reations are a problem.
Did you know they don't have to report adverse reactions to medications? There is no law - it is voluntary. So, it is grossly underreported, and doctors say "well, I've never heard . . . " It is either hospital policy or not. This is how I came to Alternet, an article on how it is not required to report reactions.

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» RE: Psychiatric is even worse. Posted by: TheLimit
» OMG! Thank you!!!! Posted by: DivaDeb
Heart Monitor
Posted by: Archie1954 on Dec 18, 2008 9:27 AM   
Current rating: 5    [1 = poor; 5 = excellent]
From personal experience I can tell you that many doctors are in a groove that is very hard to get out of. I have invested in a new medical device for monitoring heart function. The device has completed beta testing and is ready for commercialization but we find it is extremely difficult to get doctors to understand that the device actually works and has already saved numerous lives in its testing stage. Why? Because doctors know what they have learned and are loath to question all of the education and experience they have mastered even though the results of a new device is right in front of them. Can you imagine a device that can tell you if you are ripe for a heart attack, that you have blocked arteries, or a weak blood vessel that may trigger a stroke and that the tests for all of these can be done fully dressed, without invasion and in a clinic, doctor's office or free standing booth in a mall and takes perhaps three minutes. The machine's operator can be taught to run the tests with a two or three hour teaching program. It really is amazing yet doctors simply think it is too good to be true. I just hope it gets out there soon to start saving lives.

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from a patient point of view...
Posted by: ellie on Dec 18, 2008 9:43 AM   
Current rating: 5    [1 = poor; 5 = excellent]
if you have any health issues, it is up to you to gather as much info on them yourself including mediccal journals, other revelant articles and a cram course in basic anatomy of your offending body part...

know what the protocol is for all treatment of such offending body part and become a member of your own medical team...

let the 'professionals' understand that is is YOUR body and you have last word on treatment and options... if they balk, keep on dr. shoppin till you assemble a team YOU can work with and listen to you...

have a living will and durable power of attorney where someone else can get at it if you can't...

if there are different treatment protocols for you, make sure you have a copy of them to spread around the ER if you get into trouble...

don't be afraid to bitch or hold treatment until either you or your trusted other know exactly what you are getting into... watch out for the ER docs that think they know everything and make them understand nothing happens without an ok from you or your other... they will try to bully you, so, you're now labeled as 'non-compliant', but hell, you're alive...

stick with your own docs when possible... know where they have privileges and go there even if you have to pay more out of pocket...

remember, you are not a 2 legged lab rat for experiments or guesses, if they can't figure it out, move up the food chain... fight with the insurance later...

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» Great idea and advice... Posted by: wolfgangmo
Lack of time more of a problem than "rigid, uncritical thinking"...
Posted by: mjabele on Dec 18, 2008 10:31 AM   
Current rating: 5    [1 = poor; 5 = excellent]
...though I suspect some commenters, motivated more by a desire to continue hating medical providers than to actually find ways to improve our health care system, will undoubtedly prefer to believe the latter.

Appointments to see a primary care doctor in the US are typically 15 minutes in length, during which providers are usually asked to deal with at least 3-5 concurrent medical issues. This represents all the time given to 1) listen to and interview the patient, 2) perform a directed physical exam, 3) review the patient's chart, 4) cogitate, 5) order necessary labwork, X-rays, and/or other tests/referrals, 6) write/renew prescriptions, and 7) explain the diagnostic/therapeutic plan to the patient, with sufficient time for questions if the patient should have any.

Physician-patient encounters in the ER aren't much longer, due in part to the fact that ER's are overloaded with patients who use them as substitute primary care clinics in many parts of the US where primary care clinics/providers are in short supply.

Needless to say, such brief encounters make it profoundly difficult for the provider to listen, examine, explain, or even think adequately during appointments. Providers do their best in most circumstances, but often find themselves compensating for lack of time in ways that are dysfunctional, either in terms of the encounter itself, or the provider's own work / life balance.

I know, because I myself was, till recently, a full-time primary care doctor. My own way of compensating for this systemic lack of time was to maximize face-to-face encounter time with each and every one of my patients during a usual clinic day, while progressively running behind during each clinic session, routinely working through lunch, continuing beyond official closing time in the evenings, and deferring all non-urgent paperwork resulting from the appointments to "after hours" (i.e., home, effectively).

Eventually, this became too much; like many other providers, I've left primary care and decided to do something else, in my case working as a hospitalist doing inpatient care, where I'll have the "luxury" of seeing patients for 30-45 minutes at a time.

I've heard the comment sometimes that providers themselves have "chosen" these short encounter times, to maximize revenue and pad their incomes. However, given that under present circumstances it's private insurers and/or government payors like Medicare/Medicaid who "decide" at what fixed rate they'll reimburse for a primary care office visit, such a statement doesn't hold water, except possibly for a small group of truly money-hungry M.D.'s who try to game the system by shortening their encounters even further to 5-10 minutes, in order to "stack" reimbursements, as it were. Certainly there are such individuals - I know of at least one - but there aren't many, in large part because 1) most providers don't feel good practicing medicine that way, regardless of what certain commenters on this site may wish to believe, and 2) frankly, it's really, really hard to keep up that kind of pace in any case.

We need to change the reimbursement system for primary care if we want to remedy this problem. A primary care provider should not be reimbursed $100 to his or her clinic for a 15-minute office visit during which 3-5 problems are addressed, while a neurosurgeon receives close to $500 for a 30-minute visit during which he or she addresses only a single problem. If we want primary care providers to have the necessary time to listen and think and explain to us, we need to change the system to reimburse them in such a way as to enable that to happen.

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» RE: Would 30 minutes be enough? Posted by: oregoncharles
Been there. I'm ill/disabled but spouse was patient. I was not taken
Posted by: NYCartist on Dec 18, 2008 1:19 PM   
Current rating: 5    [1 = poor; 5 = excellent]
seriously while describing his symptoms. I made a lot of "fuss". We went via 911;ambulance attendants refused to push my wheelchair;made spouse do it. I'm serious. It was his brain, not heart. I got him admitted; he had health insurance. They let me stay but had a cop push me out of the ER when doctors finally did rounds. I was able to call a friend to come and get me. Hospital was investigated after I complained. And, once admitted, the dr. who had signed him in, (couldn't use his regular dr. once "in")who I'd given a list of his meds, didn't write down blood pressure meds. Luckily, spouse was able to call me and I got nurse on phone, late at night, explained and the nurse got a doctor as fast as possible since nurses can't prescribe meds. All ended OK. Nurses save drs. many times.

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Women's symptoms of heart attack can be very different from men's
Posted by: ibolyap on Dec 18, 2008 3:50 PM   
Current rating: 5    [1 = poor; 5 = excellent]
I had a heart attack at age 44. I had none of the usual symptoms that men get (crushing chest pain, pain in the left arm, etc). I was unable to explain to the paramedics what was wrong with me. They did not rush me to the hospital. When I arrived in the ER they weren't sure what was wrong either. They gave me anti-acids and baby aspirin. I got a little better then I got worse. They sent internists to see me because I had nausea. They then gave me several ECGs. It wasn't until the third one that it became irregular. The head of cardiology came by to review it and announced that I had just had a heart attack. I was then moved to ICU. It turned out that I had a myocardial infarction due to a myospasm. I don't have heart disease. They're not sure why I had a myospasm. I was lucky. My hospital specializes in women's health issues and I was able to benefit from their rehab program for women. That was 12 years ago. This event totally changed my life. Over time my health has gotten worse and I have ongoing depression. Women need to be aware that their symptoms of heart issues can be very subtle. More hospitals and doctors are recognizing that women present in many different ways and are adjusting their diagnosis accordingly.

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brilliant article
Posted by: off-the-radar 2 on Dec 18, 2008 10:34 PM   
Current rating: 5    [1 = poor; 5 = excellent]
wow, what a brilliant article. Well-written, informative and personal.

My best wishes to you, your wife and her recovery.

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Why It's Easy to Misdiagnose and Hard to Correct the Error
Posted by: mam01 on Dec 19, 2008 5:52 PM   
Current rating: 5    [1 = poor; 5 = excellent]
When someone presents with worsening chest pain and elevated cardiac enzymes, a doctor has to make some pretty quick decisions and it's not unusual to start from the worst case scenario - the heart attack - and work backwards from that.

Given that a misdiagnosed heart attack has more dire consequences than a viral heart infection, and given that women tend to have more atypical presentations for a MI, I can understand why the diagnosis was made, and I don't believe it has anything to do with arrogance as some comments have suggested.

Why no one picked up on the error illustrates how we see what we want to see and disregard those facts that don't quite fit. This is even more so when the diagnosis continues to be confirmed by other specialists. That's why it takes someone with fresh eyes and the time to study the chart to see the error.

And it's why the practice of medicine is both an art and a science.

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costs?
Posted by: driftwolf on Dec 19, 2008 11:07 PM   
Current rating: 5    [1 = poor; 5 = excellent]
As someone who has lived in several places, including Canada and several European countries, one thing stands out about this article: the overwhelming worry about COST. About going bankrupt just because someone in your family is sick, even if you have health insurance, just because they might not cover it or you're going (a term I've not heard before) "out of network".

That, to me, is just wrong. Completely, utterly, irreparably WRONG. It's sick. It's disgusting. It does not belong in a society that prides itself on being "better" than everywhere else.

For me, it's another good reason to stay away from the US, and keep to countries that understand and act upon the ideal that the health of its citizens really is the most important "national security" issue you can have.

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You are lucky
Posted by: Freticat on Dec 21, 2008 12:32 AM   
Current rating: 5    [1 = poor; 5 = excellent]
Your wife survived the ER. Mine didn't.

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Lots wrong with American Medicine-- this is not a good example
Posted by: NoLNG on Dec 21, 2008 3:04 PM   
Current rating: 5    [1 = poor; 5 = excellent]
Interesting article, some very thoughtful comments. Despite all that, I don't think this is a very good case to use to indict the American Medical system -- I doubt that it would have been any different in for example, France, England or Denmark.

1. Chest pain is extremely common and comes from dozens of different causes-- not all of which can be sorted out quickly.
2. Myocardial infarction is fairly common
3. Viral myocarditis is relatively uncommon (the average internist or family doctor might see one case every few years)
4. There has been an unusually vigorous campaign to convince the public (and doctors) that doctors haven't taken the possibility of coronary artery disease in women seriously enough.
5. Missing a viral myocarditis for a few hours or a few days is unlikely to be life-threatening; missing an MI might well be.
6. The potential liability issues in missing an MI are too grim to repeat here-- especially in the USA, but increasingly in other countries as well.

There is clearly a system problem, but just as clearly to me --having been in this business in a small town (not graced with all the high powered specialists at the writer's disposal)for 30 years-- there are some things that are going to get mis-diagnosed, no matter how savvy the doctors and nurses are.

Yes it would be lovely if family doctors and internists could have time to think, and could command adequate pay (not bad right now, mind you -- just not up to the "specialists'" pay scale) but the likelihood of that is ZERO. When mothers and primary school teachers get paid adequately for what they do, then I would hold out some hope for primary doctors.

I am watching the "health care reform" debates with great interest. Trouble is, I'm fairly sure that whatever comes out will be so heavily dominated by administrators and health care analysts and assorted insurance company types that it is unlikely that we will ever get back to patients and doctors actually talking to each other for clinically meaningful lengths of time.

Once I had a colleague who was known as the "wholistic doctor" -- because he would spend a whole day with one patient. Needless to say, when he was in a salaried position his colleagues complained bitterly, and when he went into private practice, he failed.

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