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If you like Christmas, have a job or family, or laugh at people who are 'weird,' then you just might be neurotypical.

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The Glamorous Disease

By Annalee Newitz, AlterNet. Posted September 26, 2005.


If you like Christmas, have a job or family, or laugh at people who are 'weird,' then you just might be neurotypical.
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Do you like to celebrate Christmas? Do television commercials fill you with desire for the products advertised? Do you wear gender-appropriate clothing and hairstyles? Do you think everyone should have a job, get married, and have children? Have you ever laughed at someone for acting "weird"?

If you answered yes to any of those questions, you might just be a neurotypical. The term, coined by autism and Asperger's syndrome activists in the neurodiversity movement, is being used more and more within this community to describe the sort of person whose fixation on "normal" mental activity is tantamount to discrimination. As diagnoses of Asperger's and autism skyrocket, especially among the most driven members of the scientific and arts communities, the idea that people whose minds work atypically are suffering from a terrible disease is starting to ring false. That's why the non-neurotypicals are rebelling.

At the Institute for the Study of the Neurologically Typical, a parody site that has lived since 1998 at isnt.autistics.org, a pissed-off autistic writes about the spreading problem of normal personality, which is "a neurobiological disorder characterized by preoccupation with social concerns, delusions of superiority, and obsession with conformity."

On Wikipedia you can find lists of famous people who have Asperger's, including electronic music pioneer Gary Numan and Steven Spielberg. For anyone familiar with minority politics, it should be no surprise that there are also lists of people who might be non-neurotypical because they exhibit autistic traits. Bill Gates usually tops such lists. It reminds me of similar lists on queer rights Web sites, in which activists try to figure out which famous people might be gay.

When BitTorrent programmer Bram Cohen came out last year as having Asperger's, it was like a 1960s rock star saying he'd done LSD. His altered mental state became part of his allure, part of what inspires him to think creatively. Among the geekigentsia these days, you just aren't glamorous unless you can lay claim to being a little obsessive-compulsive sometimes, or at least unable to engage in ordinary social interactions.

In another era, non-neurotypicals would probably have been called eccentrics: notoriously weird but still lovable and socially useful. Nicola Tesla, who invented AC power and only ate food whose volume he had calculated before consuming it, would certainly have been one. Modernist poet Wallace Stevens, who wrote by dictating poems to his secretary at Hartford Insurance, would have been another. The novels of Charles Dickens are full of such characters. They're weird but certainly not diseased, and they even have an honored place in their communities.

Clearly, the neurodiversity movement is aiming at a similar kind of acceptance for autistics and Aspies. As someone who could hardly be accused of neurotypicality, I can't say this isn't a worthy goal. But there's an important difference between celebrating eccentricity and glamorizing Asperger's. Eccentricity describes a behavior, while Asperger's is an identity.

The non-neurotypicals may have taken the pathologizing sting out of the names for their conditions, but they're still rallying around the words that doctors came up with to label them freaks. Even this strategy isn't a bad one. I love it when epithets like queer become badges of pride; even better is when a term like hysterical, spawned by a sexist medical community hell-bent on suppressing women's sexuality, gradually gets converted into a slang term for something that's hilariously funny.

But I must admit to a bit of a squicky feeling when people seek to define their entire identities in terms of one particular thing, whether that's Asperger's or femininity or being an alcoholic. I'm especially leery when that particular thing, in this case Asperger's, becomes a kind of personality chic.

The glamour of being non-neurotypical elides the very real issues people face when they suffer from full-blown neurological trauma. It also, in some sense, deprives people of the ability to take credit for their own behavior. Cohen's considerable talent with the Python language becomes not a spectacular behavior but merely an outgrowth of being an Aspie. I guess what I'm saying is that I'd rather act eccentric than be non-neurotypical. The former lets me take responsibility for my weirdness, and the latter lets other people define me by it.

Annalee Newitz is a surly media nerd who refuses to eat chocolate-covered garlic.

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View:
Hysterical
Posted by: La Femme Nikita on Sep 26, 2005 4:44 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
Thanks for this article girl. Very creative. Reminds me of Explainer Program where I used to work! Oh how I miss that place.
Hey I especially liked this:

"I love it when epithets like queer become badges of pride; even better is when a term like hysterical, spawned by a sexist medical community hell-bent on suppressing women's sexuality, gradually gets converted into a slang term for something that's hilariously funny."

I have experienced hysterical is a put down though...
At any rate as a mentally gifted adult with a learning disability, I am definitely outside the norm. Plus I am creative and I have faith so I am unique.

Keep writing about neurology! I love it. I took a special 1 unit class on Brain Development in Early Childhood. And thanks for using the word geek. Girl did that get slapped on me when I was in school...It still kind of stings!

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Eccentric... what a nice word
Posted by: davelwhite on Sep 26, 2005 4:59 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I agree with Annalee's comments. I think the diagnosis of "nerotypical" is funny, and also helpful because it focuses on the main problem underlying all sorts of discrimination, namely the assumption that there is a "normal" way to be human and then various types of "deviants" or "minorities" to be accepted only if they meet enough of the standards of "normal." Unfortunately, as Annalee mentions, the Asberger's people are falling into a common trap that we liberals seem to get stuck in all the time, which is assuming that people need to be members of an Official Minority Group with clearly defined (and preferably immutable/inborn) traits in order to deserve equal respect and rights.

In my experience in the queer community, for example, I have found that even among very liberal people, eccentricity will not be tolerated. It's fine to liberals that I am not straight, but then when I tell them that I don't center my personal life around one sexual relationship that takes precedence over other friendships, rarely have any sex at all, and prefer to live long term with a couple of platonic friends, lots of them just get really confused ("what category is he in?") and judgemental ("you should seek therapy to help you un-repress your sexuality," etc.). They are "liberal" and "tolerant" but only if you fit into one of the little checkboxes on their preprinted form.

I think that real liberalism involves challenging yourself to deal with broader "eccentricity": anything that is weird to you, until you come up with a damn good reason not to tolerate it (e.g. nonconsensual behavior, abuse, etc.). The onus should be on the Tolerant Person to prove why s/he should be allowed to discriminate, not on the person they are judging to prove that they are an Officially Protected Minority. Even the minorities liberals have most advocated for the rights of-- e.g. blacks, women-- get discriminated against because an officially Tolerant person thinks that they only have to accept "normal" blacks and women, i.e. ones who are exactly like them.

dave

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» Excellent analysis Posted by: La Femme Nikita
» Are you queer? Posted by: La Femme Nikita
» RE: Are you queer? Posted by: bettsoff
» I am also a feminist Posted by: La Femme Nikita
» Again, Posted by: bettsoff
» So ignore me. Posted by: La Femme Nikita
» RE: So ignore me. Posted by: bettsoff
» And how old are you Bett Scoff? Posted by: La Femme Nikita
» Also, Posted by: bettsoff
» Good question Posted by: La Femme Nikita
» RE: Good question Posted by: bettsoff
» ... Posted by: bettsoff
» Gay books Posted by: bettsoff
» XD Posted by: bettsoff
» Fine let me clarify Posted by: La Femme Nikita
» RE: ccentric... what a nice word Posted by: Samantha Vimes
Well....
Posted by: booktalker on Sep 27, 2005 7:06 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
As the mother of a young Aspie, I welcome the term "neurotypical" because I can't stand "normal" and hello, Asperger's is rooted in neurology.

What troubles me is when AS-typical (yes, a little oxymoronic) behavior is written off as mere eccentricity when it should be clear that a lot of it stems from literally perceiving the world and interpreting its neurotypical "rules" in a very different way.

I would like to see more education about the reality of AS, and I would like to see the neurotypical community learn to adapt and accommodate differences. I don't want my son to "pass" for normal: I want him to be appreciated for who he is at heart. Fortunately, thanks to the efforts of our school and support network, this is slowly happening.

My child breaks my heart at least once a week, but that's down from at least once a day, and I wouldn't trade him for a neurotypical child for the world. I just want others to understand that there is no "on/off" switch, and he will always be the kind of person who, although left-handed, will describe himself as right-handed because his left hand "is the right hand for him to use."

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Brilliance and eccentricity
Posted by: Sunfell on Sep 27, 2005 7:43 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
I've never thought of myself as 'neurotypical' (or in the SF/Geek parlance, a 'mundane'). I have enough quirks and eccentricities to put me completely outside the N/T box, and I am fine with that. I have problems with (among other things) loud noises and crowds- which can send me fleeing for solitude or earplugs. And I have a love for systems and computers and techy things that manifested early in my life. Stereos were more interesting than dolls. Making tapes with my dad was more fun than playing house. Most things that people find interesting (marriage, kids, sports) bored me to tears- and still do. I was the 'geek' in high school.

For a while, I wondered if I was an 'undiagnosed' Aspberger, because of some of my more outlandish quirks, but the tests I took revealed that I'm just (in their words) 'extremely brilliant and eccentric', rather than an Aspie. Apparently many of the traits are common between the two, with the exception of the empathic and social 'reading' skills. I've learned to cope with my distaste for certain extreme conditions, and have learned some of my coping skills from friends who are Aspies.

I'd rather be a cranky eccentric any day than a so-called neurotypical. I pitched the 'life script' they follow yonks ago, and couldn't be happier. And I wear the title 'geek' as a badge of pride.

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It's more complicated than that.
Posted by: ballastexistenz on Sep 27, 2005 9:47 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
The article describes the caricatured "aspie myth" glamorous version of autism. Some fit that stereotype fairly nicely. But the bulk of our push for acceptance doesn't come from the stereotypical "aspie success story". In fact, very few of (for instance) the designers of the site "Institute for the Study of the Neurologically Typical" even fit that pattern. We're more often the ones who were thrown out with the trash, we laugh at the idea our lives are glamorous. We don't enjoy being pathologized and turn it around with satire. One of the people who wrote for that site grew up in institutions, labeled retarded, until she could get her hands on a means of writing before staff could get it away from her. Many of the rest of us have stories not that different. Glamor? Hardly. Just wanting to be respected.

Autism is not "eccentric behavior". Autism is about the different ways in which we process and respond to information. We want these processing styles -- and the results of them -- respected as much as any other. Does this mean autism defines everything about who I am? No. Does it mean I have no free will? No. Does the way I'm wired affect every aspect of my life? Yes. As one mom put it, there would be no autism" without autistic people, it's not a thing a person has.

People who dismiss us as being about the ramblings of a "glamorous" elite are missing a deeper point. When we say we are valuable, we don't mean we're like already-valued people. Viewing us as trivializing real problems, itself trivializes many people who argue for neurodiversity (under whatever name) because we have to, not because it makes us pretty.

Non-glamorous aspects of our lives:

Why I Am Angry
In Support of Michelle Dawson
Reply to the Initiator of the Hear Their Silence Rally
Getting the Truth Out (whole site must be read, not just first part)
You Have It So Good
The Conference Presentation I Won't Make
Ballastexistenz

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Always two steps behind!!
Posted by: Dig That Jive on Sep 27, 2005 10:54 AM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
And here I was just embracing bipolarism because all the emo kids were doing it. I made a t-shirt and everything. Now I have to rethink this. Oh Annalee!!!

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» RE: Always two steps behind!! Posted by: Dig That Jive
Americans love underdogs ....
Posted by: AdamSelene11726 on Sep 27, 2005 2:56 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
... unless they bark back.

The funny thing is ... whenever people who have a problem in common start trying to define themselves and their problem for themselves ... people without that particular problem start feeling their own orderly, well understood world starting to shift under them ... and they want control back -- so, they start crying "Inappropriate Identity Politics."

And rather than trying to understand what the 'other' is thinking and feeling -- which is what "neurotypicals" are supposed to be so good at -- it's often easier to decide that the infamiliar is 'inappropriate' and take refuge in being "squicked" or "disturbed," or 'confused.'

Which is when counter insults start being coined, such as: Philistine, Square, Babbit, Mundie, Rube, Straight, and , my favorite, "Vanilla."

So, rather than being offended that this particular cohort of 'picked on people' aren't respond exactly as the pickers would prefer they do ... it might be more useful to actually spend some time on

isnt.autistics.org

People who found themselves agreeing with Analee's article probably should start with this page:

http://isnt.autistics.org/humor.html


Hint: it really isn't "about YOU'" at all. -- unless you happen to be one of the thicker-headed "helping professionals" that infest our schools and other public institutions.

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» Vanilla Posted by: La Femme Nikita
Its the sentiment
Posted by: lamar on Sep 27, 2005 4:05 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
From the day we learn to speak we need labels to make order out of disorder. Somehow, it is normal for college aged men to run around in identical T-shirts with names like "skippy" and "pooter" on the back, and yet people seem to care when these same frat boys call others retards. OK, you say, we'll call them developmentally challenged so that their self esteem isn't tarnished. Now we hear the same frat boy jerk cat call a girl who he later describes as facially challenged. The words change, but the sentiment stays the same. To do any good, you have to change the sentiment. Of course, saving the feelings of kids is fine, don't get me wrong.

In the meantime, what do regular everyday screw-ups call themselves? Where is our identity politics? Math and computer people took over 'geek' and 'nerd'. 'Dork' has an annoying component not present in many anti-social folks. Of the many things I've been called, I prefer trainwreck, it has a powerful grace and out of control demeanor.

In the end, "weird" and its variants is a badge of honor. Though who really wants a badge of honor for something they were born with?

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Nothing Glamorous
Posted by: Lukne on Sep 30, 2005 1:53 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
As a mother of two Aspy girls, I can tell you that there is really nothing glamorous about this neurological condition.

It's actually heart-breaking to see your youngster fail miserably as they try to interact with others. I couldn't care less if one of my girls becomes the head high school cheerleader, I just want them to have some supportive friends, and persue their interests.

After all, even the most introverted of us still need some kind of human interaction; it's how we live.

That is why parents of Aspies like me, spend unglamorous amounts of money on behaviorial and cognative therapies - not to make our kids normal - but to enable them to live happy, healthy and fulfilling lives.

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Nothing glamorous
Posted by: Lukne on Sep 30, 2005 2:09 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
As a mother of two Aspie girls, I can tell you there is nothing glamorous about this neurological condition. It is heartbreaking to watch your youngster fail miserably as she tries to interact with other children.

I couldn't care less if one of my girls becomes the head high school cheerleader, I simply want them to have a group of supportive friends to see them good times and bad.

That is why parents of Aspies, like me, spend highly unglamorous amounts of money on behavioral and social therapies. We don't want to make our kids normal - whatever that means - we just want to teach them how to connect with others so they can live happy, healthy and fulfilling lives.

After all, even the most introverted of us needs to some human connection; that is how we live.

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» RE: Nothing glamorous Posted by: autismvox
dfd
Posted by: aser on Sep 27, 2006 12:41 PM   
Current rating: Not yet rated    [1 = poor; 5 = excellent]
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